Julia is our 10 year old daughter who has Prader-Willi syndrome, a genetic disorder characterized by low muscle tone, developmental delay, and the inability to control her appetite, which means she is hungry 24 hours a day. This urge to eat can be life threatening if she is not monitored constantly by those around her.

Please help us raise awareness for this rare disorder by making a contribution. Your donation is going to help the New England Chapter of the PWS association and will be staying local to support our chapter. It will benefit our families by holding conferences, hiring guest speakers/trainers, sponsorships to other conferences, activities for our children, etc.

If you want to walk with us on this day let me know-the more the merrier and the bigger crowd we have the more awareness it will generate for this syndrome that so many know such little about!

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

Thank You-

Cathleen, Scott, Julia and Molly