Ethan’s Story (Written by Ethan’s Mom): On January 9^th, 2007, we were blessed with a beautiful baby boy.  

From the moment we saw him, we knew he was very special. What we didn’t know was how special he was going to be.

Memorial weekend 2007, we found out how special Ethan really was. We were vacationing in Flagstaff, where he developed a 105 fever and was admitted to Flagstaff Medical Center’s PICU where a random urine test revealed our worst fears. Ethan was suspected to have a rare form of kidney disease called Congential Nephrotic Syndrome (the kidneys would spill the protein). Ethan and I were immediately air vac to PCH that morning. From that moment on I knew we were in the best place Ethan needed to be for treatment. We were welcomed with helping hands and smiles, from the awesome nurses to the helpful doctors. Right of way we felt a sense of security.

It’s been 15 months since he got diagnosed and Ethan is doing the best he has ever! Many ups and downs as well as wagon rides around the hospital. Ethan has been through countless surgeries (including both kidneys removed) and is currently on peritoneal dialysis.

 He is waiting to be placed on the kidney transplant list which we hope will happen very soon.

 

Through this journey, Phoenix Children’s Hospital has become a part of our family in many ways and more importantly, our home away from home!

We could be any more grateful for PCH!