CHRISTINE MARCHESANO, A TEACHERS ASSIST. AT LEEDS AVE. SCHOOL, WAS DIAGNOSED IN 2007 WITH CHIARI MALFORMATION AND  CRANIAL SETTLING, A RELATED DISORDER TO CHIARI, IN WHICH THE BRAIN SINKS TOO LOW ONTO THE SPINAll CORD. 2 MONTHS LATER SHE UNDERWENT A 9 HOUR OPERATION TO DECOMPRESS THE CERVICAL SPINE AND A CRANIAL FUSION TO STABiLIZE HER HEAD TO THE SPINE.  

ONE FAMILY OF LAS , LEARNED FIRST HAND WHAT CHIARI IS ALL ABOUT  WHEN  THEIR 9 YEAR OLD SON JOSH  WAS DIAGNOSED  WITH CHIARI  MALFORMATION AFTER EXPERIENCING BAD HEADACHES AND DIZZINESS. HIS DIAGNOSIS WAS MADE AROUND THE SAME TIME LAS LAUNCHED A COMMUNITY SERVICE PROJECT WALK-A-THON IN MAY 2009. THE PURPOSE OF THE LAS COMMUNITY SERVICE PROJECT  IS TO EDUCATE STUDENTS AND STAFF ABOUT THIS  DEBILITATATING NEUROLOGICAL GENETIC DISORDER AND TO RAISE FUNDS FOR CHIARI RESEARCH.

PLUS, IF YOU DONATE $30.00, YOU WILL RECEIVE A SPECIAL ASAP WALK-A-THON T SHIRT. GIVE WHAT YOU CAN!

PLEASE HELP JOSH AND ME, IN THE FIGHT AGAINST CHIARI, AS WE WALK ON MAY 25, 2010 IN THIS YEAR'S PLEASANTVILLE  SCHOOL DISTRICT, LAS CHIARI AWARENESS WALK-A-THON BY DONATING OR SPONSORING US IN THE WALK BY DONATING TO THE AMERICAN SYRINGOMYELIA  CHIARI ALLIANCE PROJECT. ALL DONATIONS ARE GREATLY APPRECIATED !  

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Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

Sincerely

Christine Marchesano and the Goldsburg family!