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MAY IS PRADER-WILLI SYNDROME AWARENESS MONTH
Connor George Mendoza is a wonderful 21 month old little boy that brings a smile to the faces of everyone that he meets. He is growing bigger and stronger every day. He can sit up on his own from lying on the floor. As of May 12th he is now crawling, YAY!!! He can also go from sitting on a little stool to standing at the couch unassisted for about 5-6 sec. He is making great progress!! We are so proud of him.
Connor was born with Prader-Willi Syndrome. PWS is a complex genetic disorder of chromosome 15, occuring in 1:12,000 to 1:15,000 births. It affects appetite, growth, metabolism,cognitive function and behavior. It is typically characterized by low muscle tone, short stature, incomplete sexual development, cognitive disabilities, problem behaviors, and the hallmark characteristics -involuntary and uncontrollable chronic feelings of hunger and a slowed metabolism that can lead to excessive eating and life-threatening obesity. At this time there is no cure for PWS. Those who have PWS need intervention and strict external control, including padlocking access to food, to maintain normal weight and to help save their lives.
Connor, dad, mom, friends and family will be walking for the second year to benefit the Prader-Willi Syndrome Association of New England on June 04, 2011. Please join us in raising money for our amazing, beautiful little boy and all the other wonderful children, adults and their families struggling with this syndrome.
On June 04, 2011 there is a Fundraiser/Walk for the New England PWS Community. This walk is being sponsored by the New England Chapter.
address of the park:
259 Massapoag Avenue
North Easton, MA 02356
Please forward this page to everyone you know. Thank you very much for all of your help, The Mendoza Family.
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