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$500
goal
$140
Raised so far

28 % to goal

SHARE & CARE COCKAYNE SYNDROME NETWORK

2012 Butterfly Walk NY- Butterfly walk for Hannah C Hannibal,  New York

Donations as of April 23, 2014:

$0.00 Raised Offline
$140.00 Raised Online
$140.00 Total Raised

2012 Butterfly Walk NY- Butterfly walk for Hannah C

 

Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, microcephaly, premature aging, sensitivity to sunlight, moderate to profound developmental and neurological delays, and a shortened lifespan. At this time there is no treatment available for CS. There are only 200-300 children in the World with this rare genetic syndrome.

Share & Care’s mission is helping children with Cockayne Syndrome and their families improve their quality of life through support, education and research. Share & Care is an all volunteer organization -- no paid employees

Date Saturday, April 28, 2012
Location Hannibal ,  New York
Contact Jennifer Crego
315 439-9524

Supporters

Comment Donation
diane james
$100.00
Calkins Family
$20.00
Crystal Mason
$20.00

Donation Summary

Raised Offline
$0
Raised Online
$140
Total Raised
$140