Thank you for visiting our fundraising page!
Team Damian is back for another year at the 2013 Walt Disney World Marathon and Half Marathon! And this year the team has grown!!! We would love for you to sponsor us as we use the marathon to raise awareness of Smith Lemli Opitz Syndrome.
In March 2011, Nate and Mary Helen's son Damian was diagnosed with SLOS. It is a rare, recessive genetic disorder that affects the body's ability to produce cholesterol. Although many adults struggle to keep their cholesterol levels down, it is vital to our early growth and development. Without it, many issues can arise. Because it is rare and many children diagnosed with severe forms of SLOS don't make it past their first year, there are only about 500 cases within the US. Also, because so little is still known about SLOS there is a high likelihood that many milder cases go undiagnosed.
Damian has been through so much already (1+ months in the NICU, 2 surgeries, physical and speech therapy weekly, and numerous doctor visits) yet he manages to be the happiest little guy we know. He's now walking around and working on talking. He's such a fighter and an inspiration to us all! We hope to return the favor by raising money for the Smith Lemli Opitz Foundation.
How you can help!
Because this syndrome is rare, funds for research are limited. Please help us change this by donating here on this website! Also, if you feel inspired to run the marathon (or half) with us, we'd love more members to Team Damian!!!
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support our fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
You can follow Damian's story here
Special Thanks to the Team Damian Members:
Katie Jane Smith
The Fleming Family