Team Noah -- Sinclair-Lazerwitz Family
Please join me, my sister Talia and my parents Alyson and David on May 19th when we travel to Sacramento to walk and raise money for the Angelman Syndrome Foundation. The ASF is an amazing organization which advocates on behalf of children like me who have Angelman Syndrome, provides critical funding for medical research to develop a cure for this disorder and provides educational and medical resources for families, teachers and doctors.
When I was diagnosed three years ago, the doctors told my parents that I may never walk, would be unable to speak and would suffer from severe cognitive impairments and seizures. What they couldn't know and didn't tell my parents is that I have a tremendous love of life and a determination to be all that I can in this world. During the past year, despite some pretty scary seizures, I've made some big accomplishments -- including learning to walk (heck, I can almost run now), developing a few basic signs and beginning communication using a picture exchange system. I know that I will continue to learn and make progress with the help of so many amazing friends, teachers, therapists and organizations including, most importantly, the ASF.
It would really mean a lot to me and my family to have your support even if you can't make it to the walk. You can make a safe, secure donation on this website and your donation will even be tax deductible. Maybe one day I'll be able to actually say "thank you" myself -- until then, you can be assured that I'll be saying it with a smile!
All my love, Noah (and Alyson, David and Talia).