Thank you for visiting my fundraising page for Gwendolyn Strong Foundation!
Donating through this website is simple, fast and totally secure.
The Gwendolyn Strong Foundation (GSF) is a 501(c)(3) nonprofit organization seeking to increase awareness of Spinal Muscular Atrophy (SMA), the leading genetic killer of young children, and accelerate research focused on a cure for this cruel disease. SMA is degenerative and terminal with no current treatment or cure. And while babies are born perfectly healthy, within months of an SMA diagnosis, their bodies begin to fail them. Although not a household name, SMA research is extremely mature and is considered a "gateway" to cures for countless other diseases. Researchers have stressed that a cure is possible within the next five years and the NIH has coined SMA the disease "closest to treatment" -- all that is needed is funding...
Bill and Victoria Strong founded GSF to fight alongside their daughter, Gwendolyn, who was diagnosed with SMA at 6-months-old. Since its inception in 2009, GSF has raised more than $200,000, has reached more than 2 million people through social media campaigns, was selected as one of the top 100 charities of more than 500,000 organizations in the Chase Community Giving campaign on Facebook, has lobbied Congress in support of increased SMA funding, and has made several targeted grants to research programs that have the potential to cure SMA, one of which was named by Esquire magazine as a “Project That Will Change Science Forever”.
Gwendolyn has SMA type 1 which claims the life of 90% of affected children by the age of 2. Gwendolyn just turned 2 so fortunately she is beating the odds!
While it is obviously a heartbreaking situation, Bill and Victoria are truly inspirational to many people for their love of Gwendolyn and amazing effort to enjoy every day as a family and make the quality of her life as good as humanly possible.
Please help me raise money to find a cure for SMA! This disease can be cured in our lifetime and you can help make that happen!
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!