Delanie was born with a disorder called TSC. Tuberous sclerosis complex (TSC) is a devastating genetic disease that causes tumors to form in various organs, primarily the brain, eyes, heart, kidneys, liver and lungs. People with TSC often develop epilepsy, autism, and learning and behavioral problems. Currently, there is no cure. 1 in 6000 people have this disease and 2 babies born everyday will have it.
Thousands of kids with TSC, and their families, live each day facing unimaginable circumstances. Yet they carry on, with courage and dignity and inexhaustible determination.
Not coincidentally, the possibility of a cure is closer than ever. And because TSC is the leading genetic cause of epilepsy and autism, every dollar raised to find a cure and better treatments for TSC can also mean a better understanding of epilepsy and autism, even cancer—diseases that touch most everyone all of us know and love.
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