Giving for Gracie and her NF friends!
On November 5, 2006 I am going to return to my home and run the NY Marathon.
I will be raising money to help support the local and national organizations that have become part of our lives and a part of our family since our 5th child Gracie was born 3 years ago. Our youngest child was born with Neurofibromatosis, a genetic disorder of the 17th chromosome. One in every 3500 babies born have NF. This progressive disorder will cause tumors to grow internally and externally throughout her life. She will be at risk for learning disabilities, bone complications, high blood pressure, scoliosis,frequent headaches and a multitude of other complications. There are no cures for Neurofibromatosis. There is only hope.
I have chosen to raise money for our local support group in order to support all the good they do for the West Michigan families affected by NF. They offer lectures, travel assistance to those who need some financial assistance, holiday parties for the families, educational materials, and friendships during some of our scariest and loneliest moments as parents. I will also donate part of my funds to the Neurofibromatosis Inc., the National Org. which helps tie the U.S. together and communicate amongst the smaller NF communities, express our needs to the government, provide summer camp for kids, and focus on research advancements.
Thank you for visiting my Personal Fundraising Page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!