~June Is  MdDS Awareness Month~

  The month of June is Mal de Debarquement Syndrome Awareness Month. The MdDS Balance Disorder  Foundation is hosting fundraising and awareness events to bring information about MdDS to the forefront as we search for a cause and a cure for this rare disorder.  Please let us know if you would like to sponsor an event or online fundraiser by going to www.firstgiving.com/mddsfoundation or by contacting us at newsletter@mddsfoundtion.org.

• Hayley Wilkinson, a young lady from the United Kingdom,  recently recorded  a song entitled, "Rock the Boat" to help kick off MdDS Awareness Month. The song and video should be ready for release by the beginning of June, please watch for more information in the near future. 
  
• On June 18th, Dr. Ron Tusa, of the MdDS Balance Disorder Foundation Advisory Board, along with Jane Houghton, of the MdDS Balance Disorder Foundation Board of Directors, will present at the “The Advanced Level Balance Course” organized by the Institute of Sound and Vibration Research from Southampton University  in England . The three day course is aimed at clinicians from all over the world who have a sound knowledge of vestibular assessment and management and wish to consolidate and advance their knowledge. The course incorporates group practical work and the examination of patients with specific disorders. Dr. Tusa will handle the diagnosis and treatment of MdDS while Jane will explain what it is like to live with MdDS to the sixty or so attendees from a patient’s perspective. Recently analyzed patient survey information will be included in the presentation. There is always hope that one of those attending the conference just might be our future in cracking the mystery of MdDS!
  
•  ~Catch the Chocolate Wave~ On June 18th, Terri and Mike Gibson will host an Evening of MdDS Awareness at The Chocolate Lounge in Old Town Spring, Texas. (http://www.thechocolatelounge.net/Home.html) The evening will feature dessert, chocolate, wine, live music, and a silent auction. Come have dessert and listen to the music of Gary Floyd. (http://www.gary-floyd.com/), participate in a silent auction, and enjoy the company of good friends while learning more about MdDS which Terri has been living with for over four years. For tickets, please go to: http://mddswave.eventsbot.com/
  
• For the June campaign, Terri Gibson created a new public service announcement explaining Mal de Debarquement Syndrome and the Foundation which can be seen at www.firstgiving.com/mddsfoundation or by clicking here. It is also easy to make a donation while visiting the site. As always, you can find alternate ways to donate at the MdDS Foundation web site.
  
• Putting a Face to MdDS: We are currently looking for people to write recounts of their MdDS journey including their precipitating event, getting a diagnosis and coping skills for living with this life-altering syndrome. We would like to highlight these stories during Awareness Month and on the web site. (Please send information to newsletter@mddsfoundation.org)

Thank you for visiting the www.firstgiving.com/mddsfoundation page. If you would  like to learn about alternate ways to donate please go to our web site for more information. www.mddsfoundation.org.

Offline Donations

Judy M.  - Happy Birthday, Marilyn

Helen & Roger Weiland - In honor of Theresa Weiland

Mark & Cynthia Denney - In honor of Terri Gibson