www.ryansquest.org
Dear friends & family,
On April 1, 2012 I will be participating in a 5k run for Ryan's Quest.
Ryan's Quest is a non profit organization whose mission is to raise awareness for Duchenne Muscular Dystrophy with the purpose of allocating funds for research that has the greatest potential of funding a treatment or cure for this disease. Duchenne Muscular Dystrophy is the most common lethal genetic disorder diagnosed during early childhood affecting 1 out of every 3500 boys. It is a progressive muscle disorder that causes the loss of muscle function and independence. Typically, boys affected by DMD will lose their ability to walk between the ages of 8 and 12, require respiratory support by their late teens and survive only into their 20s. It knows no bounds and crosses all cultures. To date there is no cure.
This is a charity very close to my heart as good friends of ours have a son of 7 years who was sadly diagnosed with DMD a number of years ago. On April 1, I will therefore be running for our special friend but also for the many boys like him who have this lethal disease.
I hope that you will support me by donating to this most deserving quest! Know that I will run hard for this cause but it is only together that we can make a difference because every penny counts when the lives of these boys are at stake. Please give what you can.
Thank you so much - I am eternally grateful.
Best wishes, Debra