We are excited to hold the 7th Annual Jack Martin Bevacqua Dinner Dance and Auction. We hope that you can join us!
Saturday, October 23, 2010, 7 pm to 11 pm
VFW Post 2179, Hwy 36, Port Monmouth, NJ 07758
Tickets are $40 and include dinner, dessert, beer and wine
To purchase tickets, enter the amount below and state in the commentary that you need tickets
Sponsorship Opportunies are available. Email us at jackamlyn@msn.com for more information. If you already know what level you want, please enter what sponsorship level you are purchasing in the commentary. Thanks!
About Our Jack and PWSA (USA) :
Our son, Jack, was born 8 weeks early at 2 pounds 13 oz. He was immediately placed on life support, due to his weak muscle tone. Ten days after birth, we learned that Jack had Prader-Willi syndrome (PWS). We immediately contacted the national PWS organization, PWSA(USA). The organization provided crisis counselling and parent mentoring to get us through a difficult time. We learned that children with PWS have weak muscle tone, developmental delays, failure to thrive at infancy, but eventually develop an insatiable appetite which must be closely monitored and controlled.
Jack came out of the hospital after 3 and 1/2 months, still on oxygen. This syndrome has delayed all of Jack's milestones. He did not crawl until he was 2 1/2 years, walk until he was 3 1/2 years and did not talk until 5. His progress is extremely slow. He is now 8 years old, but cannot run or jump or write nor is he interested in normal childhood play activities. He also has to be watched closely in the kitchen or he will seek food. On the up side, he has a magnetic personality, is known as the mayor, and generally is a very happy little boy.
Throughout the years, PWSA(USA) has provided enormous support to us by providing parent mentoring, educational support for school and information regarding medical issues. The organization spearheads research that we hope will eventually unlock what drives our PWS kids to seek food and have an uncontrollable appetite. We are thankful that we have this organization to turn to, as it is a backbone for us and others dealing with this debilitating disease.
Thank you for your support of this organization, your support of us and your love.
Jack and family
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