Elizabeth Burek's Fundraising Page
Dear Family and Friends,
As many of you know, my husband, Mark inherited this horrible disease from his mother, who inherited it from her father. Not only has Huntington's Disease impacted our family in unimaginable ways, but thousands of other families as well.
On Sunday, May 23, 2010 I will be participating in Team Hope Walk for Huntington’s Disease in order to raise money for research and education. The walk was moved from September to May because May is HD Awareness Month.
For those who are not familiar with Huntington’s Disease, it is a hereditary, degenerative brain disorder. HD slowly diminishes the affected individual’s ability to walk, think, talk, and reason. HD is recognized as one of the more common hereditary diseases, affecting males and females and crosses all ethnic and racial boundaries. Each child of a person with HD has a 50/50 chance of inheriting the fatal gene. Everyone who carries the gene will develop the disease.
At present there is no cure for HD. Researchers are optimistic but we need your help.
On May 16, we are holding a benefit dinner for Team Hope at Tully's, in Syracuse. Please check out the Facebook Event Page. Hope to see you there!
Donating through this website is totally secure and most efficient to support my fundraising effort. Join Team Hope today to find out how you, your family and friends can make a difference and bring hope to those living with HD.
If you prefer to write a check, please make it payable to HDSA (Huntington’s Disease Society of America) and mail it to me at my address.
Thank you for taking the time to read this important message and many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
Elizabeth Burek