Eric Schotz's Fundraising Page
ABOUT ELLIOTT
Elliott was diagnosed with infantile Tay Sachs disease at 9 months old. Although he will never walk, let alone run, one of his favorite pastimes is riding in the jog stroller during his dad's weekend runs. Fresh air, sunshine, and a nice breeze is heaven to him and his dad. One of the lessons Elliott has taught us is to enjoy and live for today and embrace what we have and what we can do. Elliott has now inspired a
Run Across Alabama in July 2009, completion of a friend's first marathon in February 2010 , and a continuous 100 mile run by another friend at Delano Park in March 2010.
NTSAD Mission
The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.
RESEARCH
We are very excited to report on great progress at Auburn University. Two cats with a HEX-A enzyme deficiency (like Tay-Sachs) have been successfully treated by gene therapy at the college of veterinary science. This could be the cure we are all working towards. Funding is needed to continue this work and hopefully begin human clinical trials in the next 2-5 years.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
For more details about the run across alabama, visit www.runacrossalabama.com