My name is Heather Simmons. Our beautiful little boy Owen passed away on November 14, 2009 at the age of 23 months old. He was diagnosed with Spinal Muscular Atrophy in December of 2008- this disease weakened all the muscles of his body, including those used to eat, breath and move. He was a bright, funny child in a failing body. This disease has no cure and is the #1 genetic killer of children under 2 years old.
I am running my second half marathon in memory of the O man. It is so amazing that my little boy has inspired others to raise money to help find a cure for this horrible disease. Please join us in our quest to raise money for the GSF. The GSF is a terrific organization which funds many research projects that focus on searching for a cure.
Every little bit helps and we appreciate your donation, big or small!! Thank you for helping! I look forward to joining many friends, family and even strangers on March 18th. All the SMA angels and children still fighting this disease will help motivate us every step of the way! We run for those that can't!!
Thank you for visiting my fundraising page!
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Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!