3rd Annual Mark Noah Balloon Walk for SLOS
Dear Friends and Family!
It's me again... Markie Noah from
Fargo, North Dakota . Let me start off by saying a HUGE THANK YOU to all of you who have come with us on our journey towards finding a cure for my syndrome - Smith-Lemli-Opitz Syndrome. Because it is so rare... there are only a handful of families that raise desperately needed dollars for research. Your 100% tax deductible donation will be sent directly to the SLO/RSH Foundation, a great non-profit foundation that is dedicated to raising SLOS awareness and providing grant money to specialists dedicated to SLOS research. It is amazingly run solely on volunteer power to ensure that as much money as possible goes towards finding better treatments for our children.
3rd Annual Markie Noah Balloon Walk - we're hoping that it will be our best WALK yet! Mark your calendars for:
Saturday August 30th, 2008 (
LINDENWOOD
PARK - MAIN SHELTER,
Fargo, ND )
Registration begins: 10:30am
Walk begins: 11:30am
Free Lunch: 12:00pm (Hot dogs, Breadsmith Cookie Bars, Veggies/Fruit, Lemonade)
Love, Markie
We hope you can come and join us for a great lunch and a relaxing afternoon of fun. For those who cannot attend and still wish to donate to the cause...
donating through this website is simple, fast and totally secure. Many thanks for your support -- and don't forget to forward this LINK to anyone who you think might be interested in helping.