1 baby is born every 30 minutes with a Lysosomal disease like Sandhoff.
My BUTTERFLY Teresa was diagnosed with Sandhoff Disease when she was 10 months; she was 20 months when she passed away.
There is no treatment at this time for this disease. Most children with Sandhoff die by the age of 3. We started a campaign “Help Teresa” with the help of the NTSAD association. We are raising awareness of Lysosomal diseases such as Sandhoff. By doing this it is our hope that more research leads to a cure in the near future.
Thank you for visiting my fundraising page.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support.