As many of you know my mother passed away from scleroderma about 2 years ago.  Unfortunately they do not know much about scleroderma.  Some doctors say that it is hereditary and the children can be diagnosed with it, other doctors say that it skips a generation and our own children may be diagnosed one day.

It scares me thinking one day I might lose my son, niece, nephew, sisters, or even my own life the same way my mother has.  Not many people know about scleroderma so there hasn't been many studies or research done.  Please donate $5 to team Snow White for my mother and the rest of our family and/or join our team on  Sunday, June 5th

11th Annual “Stepping Out To Cure Scleroderma”

Shore Walk, Manasquan, NJ

Registration 9:30am

Walk Starts 10:30am

Directions

From North: Take Pkwy. south to exit 98. Take Rt. 34 South

for about 21/2 miles. Then take jug handle to Atlantic Avenue. Follow

Atlantic Avenue to end. Turn right on Broad Street.

Turn left onto Main Street. Turn left onto First Avenue.

Turn left onto Stockton Avenue.

From South: Take Pkwy. north to exit 90. Turn right onto Chambers

Bridge Road. Turn left onto Rt. 70 East and follow for about 51/2 miles

to Rt. 35 North. Continue to next circle and make right onto Atlantic

Avenue. Follow bolded directions above.

From Western New Jersey: Take Rt. 195 East until the end. Go

south on Rt. 35 to Manasquan Circle. Go 3/4 around the circle 

 

Thank you for visiting my personal fundraising page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts.

Scleroderma, also known as systemic sclerosis, is a chronic, often progressive and devastating autoimmune disease in which the body's autoimmune system attacks its owntissues. There are 300,000 Americans with Scleroderma, and four out of five are women - usually stricken in the prime of life. The cause of Scleroderma is unknown and the length or course of the disease is unpredictable. It is characterized by swelling of the hands and feet, stiffness, overwhelming fatigue and extreme sensitivity to cold. As the skin hardens, the disease may begin to affect internal organs such as the kidneys, lungs and heart. Its symptoms can range from mild to life-threatening.

It is difficult to solicit funds for research and public awareness for Scleroderma due to the small number of patients (just over 300,000 nationally) who have this disease. It is called an "Orphan Disease" in government lingo, and as such, receives a small percentage of the funds earmarked for research. That's why it is so necessary for interested individuals to do what they can to raise awareness and funds for Scleroderma! We can only hope that someday, disease will have a cure, but for now, the fight is still on in many arenas.

Although there is no cure for Scleroderma at the present time, there are many treatments available. And, of course, there is always hope that in the not -too - distant future, medical research will find a cure. Research for Scleroderma is increasing each year. In fact, some of this research is made possible by your generous contributions. The Scleroderma Foundation is a 501(c) (3) national nonprofit organization serving the interests of persons with Scleroderma. The Foundation's chapters and support groups nationwide help to carry out its three-fold mission of support, education, and research. To learn more about my nonprofit, please go to the website-- http://www.scleroderma.org/chapter/delaware_valley/

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!