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$2,500
goal
$1,086
Raised so far

43 % to goal

SCLERODERMA FOUNDATION - DELAWARE VALLEY CHAPTER

12th Annual Stepping Out to Cure Scleroderma Shore Walk Manasquan, New Jersey

Donations as of December 18, 2014:

$0.00 Raised Offline
$1,086.16 Raised Online
$1,086.16 Total Raised

Jackie Van Name's Page in Memory of my mom

Thank you for visiting my personal fundraising page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts.

Scleroderma, also known as systemic sclerosis, is a chronic, often progressive and devastating autoimmune disease in which the body's autoimmune system attacks its owntissues. There are 300,000 Americans with Scleroderma, and four out of five are women - usually stricken in the prime of life. The cause of Scleroderma is unknown and the length or course of the disease is unpredictable. It is characterized by swelling of the hands and feet, stiffness, overwhelming fatigue and extreme sensitivity to cold. As the skin hardens, the disease may begin to affect internal organs such as the kidneys, lungs and heart. Its symptoms can range from mild to life-threatening.

It is difficult to solicit funds for research and public awareness for Scleroderma due to the small number of patients (just over 300,000 nationally) who have this disease. It is called an "Orphan Disease" in government lingo, and as such, receives a small percentage of the funds earmarked for research. That's why it is so necessary for interested individuals to do what they can to raise awareness and funds for Scleroderma! We can only hope that someday, disease will have a cure, but for now, the fight is still on in many arenas.

Although there is no cure for Scleroderma at the present time, there are many treatments available. And, of course, there is always hope that in the not -too - distant future, medical research will find a cure. Research for Scleroderma is increasing each year. In fact, some of this research is made possible by your generous contributions. The Scleroderma Foundation is a 501(c) (3) national nonprofit organization serving the interests of persons with Scleroderma. The Foundation's chapters and support groups nationwide help to carry out its three-fold mission of support, education, and research. To learn more about my nonprofit, please go to the website-- http://www.scleroderma.org/chapter/delaware_valley/

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

Supporters

Comment Donation
Jonathan Campanaro
$50.00
DeGregorio Family
$25.00
The Curley Family see you at the walk
$25.00
Fernandes Family
$75.01
Claire fessler
$60.00
Anthea Millroy Enjoy the walk!
$25.01
Pamela Cardona Have a good walk!!
$25.00
Klitz Family
$25.00
Dee and Bob Vernon
$25.00
Vicki, Brody, and Rhiannon XOXOXO
$25.00
John and SusanVan Name Miss you much Jeanne
$100.00
Rosanne & Charlie DeGregorio
$25.00
Anonymous
$100.00
Barlett Family
$25.00
Stephen Antenucci
$50.00
Jonathan Campanaro
$100.00
The Yesaitis Family
$25.00
Anonymous good luck, continue being as strong as you are
$106.15
The Karrick Family
$50.00
Melissa Lupinski
$25.00
Toni Marie Your mom is certainly proud <3
$10.00
Brittany
$10.00
Jackie and Donovan we miss you more and more everyday
$100.00

Donation Summary

Raised Offline
$0
Raised Online
$1,086
Total Raised
$1,086