If you'd like to join my team, please click "Team" tab above and then "Get Started". Hope you can join us on May 15th, or if not that you join us through setting up your own page and spreading the word!
Thank you for visiting my Personal Fundraising Page. Any amount you can add will be GREATLY appreciated! I have a chance to raise funds for the foundation to help find a cure for this very cruel disease this way. You can learn more about this event at http://www.firstgiving.com/scl-northernca. If you cannot participate by joining the team and walking, running or participating in the silent auction, you can still donate directly to the cause. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts. Many thanks for your support -- and please forward this to anyone who you think might want to donate, too!
Many of you have followed my battle with this debilitating disease over the last three years. Some of you don't even know that medical experts feared for my life just over a year ago. I am sorry you are learning about it here. It was very private but became public to help raise awareness and help me and my family survive. It has been a scary rollercoaster ride, but thanks to a wonderful team of doctors and healthcare professionals, and support and prayers from amazing family and friends, I am still here able to fight for everyone afflicted like me.
Scleroderma is a chronic, often progressive autoimmune disease in which the body's immune system attacks its own tissue. The disease, which literally means "hard skin", can cause thickening and tightening of the skin as well as serious often irreversible damage to internal organs. It occurs 3 to 4 times more often in women than men, and affects children. 15% of people with this disease develop an aggressive form of diffuse systemic sclerosis, a very severe & life threatening manifestation. Regardless of the form, it is at best a life changing diagnosis with no known cause or cure and at worst one which will take a life within a few years.
For more info please visit www.scleroderma.org, www.scleroderma.org/norcal & www.sclero.org to learn more.
There is good quality research happening but it takes substantial amounts of money to fund this research. Scleroderma is not as well known as some of the other autoimmune diseases (e.g. AIDS, Rheumatoid Arthritis, and Lupus), and therefore needs to reach out for that fundraising through direct channels like this.
I am so much better this year. I'm very thankful for that. A lot of prayer and support from medical professionals, family, friends and even strangers got me to this point. But there are still many challenges I face, most of which you can't see. Others have lost or are losing the battle. Please help us find a cure. Any amount you can donate toward this worthy cause would be greatly appreciated. It only takes a few large donations to reach a goal, but more likely it will be reached with many, many smaller donations so please know literally any amount you can add will help. Thank you in advance!
If you can join me in walking, running either 2 miles or a timed 10k, or even participating in an on-site silent auction and raffle and raising funds that way, please join the Healing Jane team through this website. It kicks off with registration at 8 a.m. and walking / running starting 9 a.m. Sunday, May 15, 2011 at Almaden Lake Park in San Jose. The link "Team" is at the top right portion of this page under the fundraising meter.