Dear Friends:

What happens when someone in your family becomes the one in 10,000 that is diagnosed with Huntington’s Disease? Initially, you  have a good cry, then do your research. You  find out that there is very little  safe medication, no cure and a 10 year life expectancy. You also find that there is a 50% chance that the HD gene is passed on to the children of the carrier.

So, you try to give  support. You call, email, visit; you send notes, you pray AND… you sign up for the Huntington’s Disease Walk for Hope.  Because along with funding research for a treatment or cure, there is still HOPE!

Our brother in law Richard was diagnosed about 3 years ago, and is currently on disability.  He has bad balance and poor coordination, some neighbors thought he was habitually drunk.  His speech is slightly slurred, and his recall isn’t as sharp as it was.  But his sense of humor, easy going, uncomplaining  personality  and love of movies  and comics is still very much intact.

The Huntington's Disease Society has been an extremely helpful resource to Janet's sister Carol, Richard and their two sons Grant and Geoffrey. At present there is no cure on the horizon for HD. We are humbled and impressed at how they are meeting the challenges of HD with a mixture of hope, humor and heart.

The world is filled with countless worthy charities  and we are sincerely touched and thankful for  your donation.

Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. If you prefer to write a check, please mail it to us written to Huntington's Disease Society of America.

Many thanks,

XOXO Janet and Paco