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$3,000
goal
$3,880
Raised so far

129 % to goal

HUNTINGTON'S DISEASE SOCIETY OF AMERICA

New York City Marathon

Donations as of September 23, 2014:

$200.00 Raised Offline
$3,680.00 Raised Online
$3,880.00 Total Raised

New York City Marathon

In June of 2011, my father in-law was diagnosed with Huntington's Disease - a rare neurodegenerative genetic disorder that affects those who have it emotionally, mentally and physically. Physical symptoms usually show between ages 35 - 50, but mental and emotional symptoms (depression, anxiety, etc) can occur sooner. Since the disease is caused by an autosomal dominant mutation in one of an person's two copies of the Huntingtin gene, offspring of the affected individual have exactly a 50% chance of inherting the disease.

My father-in law has two daughters - my wife, and her sister.

Since the signature of the disease is a mutation in the Huntingtin gene, genetic testing can be performed to determine if an individual has the mutated gene. If you have the mutated gene, you have the disease. It's just a matter of time before symptoms are visible.

My wife and her sister decided to be tested to determine if they have the mutated gene. My sister-in-law has HD. My wife does not.

During this time, I took up running. When I started, I didn't realize I could actually help my extended family by doing something I ended up loving to do. When I found out that the HDSA had a few spots available to run the NYC Marathon, I was in!

I run for my wife and my kids. I run for my sister-in-law, her husband, and their three kids, I run for my father-in-law and mother-in-law. I run for anyone affected by this ridiculously cruel disease.

I run for the Huntington's Disease Society of America. Their mission is:

     

  • To improve the lives of people with Huntington's Disease and their families.
  • To promote and support research and medical efforts to eradicate Huntington's Disease.
  • To assist people and families affected by Huntington's Disease to cope with the problems presented by the disease.
  • To educate the public and health professionals about Huntington's disease.

     

Supporters

Comment Donation
Anonymous Don't forget the bandaids for your nipples. Oh yeah...don't forget Phil 4:13 either. Good luck.
$30.00
Anonymous Good luck Jason
$100.00
Anonymous
$100.00
Blake and Chelsea Bowen Given that I only run when chased, I have to applaud you for running 26 miles. Just watch out for the yellow cars; they don't stop!
$250.00
Dan Grazier
$100.00
Nehal Patel Good luck!
$100.00
Steve
$50.00
The Young Family You go Jason!
$100.00
Utterchaos
$50.00
Kellam Family
$50.00
Schulzes 2 Timothy 4:7
$50.00
Dan and Marty Heard Gig'em Ag!!!
$50.00
Avery and Rhys Harris Go Jason!
$50.00
The FeraJollys Run Jason Run!!
$132.00
Alexis & Peter Stokes So proud! Good luck!
$100.00
Mark
$100.00
Brenda Lumsden Can't think of a time I wouldn't support this precious guy!
$50.00
Alanna Mercy Way to go Jason! Love you guys!
$50.00
Kim and Curt Eiffert Keep being awesome!
$75.00
Davenport Family
$25.00
Mandy Mccollum and Family What a great cause! I love the Olstad's!!!!
$50.00
Randy, Sparky, Terry & Vickie Morgan God bless you and Jim
$400.00
Nick & Barbara Good luck and God Bless!
$200.00
Aunt Sharon Hey Marathon Man - You're the best!!
$100.00
Brad and Natalie Harris Thanks for the Team B help Jason.
$100.00
Anonymous
$50.00
Spero Family Y'all are just so awesome... :)
$50.00
The Sutherland's Strength prayers for you!
$25.00
Barry and Lisa McDonald Go, Jason, go!!
$50.00
Trent Because Haley-bo told me so.
$18.00
Anonymous Good luck Jason!! You will do great!
$200.00
Melissa Baker Jason you and your family have been such a huge help for my family and I'm so happy to be able to support yours. Good luck!!
$100.00
Carter, Karen, Mason, & Mackenzie Lubbe
$50.00
The Shalek Family
$100.00
The Schubert Family Good luck Jason!
$30.00
Anonymous
$200.00*
Scott Reasor
$100.00
Ron and Sally Reasor ( Sasa and Dadoo ) Sally and I couldn't be prouder of our son in taking on this challenge. HDSA has a champion on their team.
$100.00
Grandma O
$100.00
Haley Cihock You are a champion husband, dad, and son-in-law! I'm so very proud to call you my BFF-Hub, Captain Awesome!
$50.00
y yay Jason!
$40.00
Leanne, Jarrod, & Wesley Johnston Way to go, Jason!
$50.00
Amy Leasure Run, Jason, run!
$30.00
Sami Alford Way to go Jason!! Good luck!
$25.00
Tracy Toscano Way to go Jason! I will be there with a HUGE banner rooting you on!
$50.00

Donation Summary

Raised Offline
$200
Raised Online
$3,680
Total Raised
$3,880
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