Thank you for visiting my fundraising page for the 2012 NYC Marathon. Huntington's disease has had a profound and lasting impact on my family. My Grandma Gray had the disease, and for the thirteen years I was blessed to know her before she passed away, she was confined to a wheelchair and unable to speak. Despite these setbacks, she was one of the most loving people I have ever met, and I wish I could have known her without the limitations of her disease.
Unfortunately, Huntington's is hereditary, and my mother and her sister have tested positive for the disease. The sisters are currently doing very well, continuing to live their lives and showing incredible courage in the face of a disease that currently has no treatment and no cure.
Do I have the disease? Currently, I don't know. My chances are 50/50, and a genetic screening could tell me for sure. For now, I don't really want to know, but I am seriously considering signing up for any study of at-risk individuals that could help researchers identify early symptoms and markers for the diseas.
On November 4th, 2012, I have the opportunity to make a stand against this disease that continues to plague my family. I plan to raise at least $3000 for the Huntington's Disease Society of America so they can continue to improve the lives of those living with HD, and help the families of thos with loved ones impaired by the disease.
Please consider donating to help me reach my goal, and thank you so much for taking the time to read my story.
Best,
Jeff Dusek