Thank you for visiting my fundraising page!
In March of 2008, my then 18 month old son, Jameson was diagnosed with Sturge-Weber Syndrome. Shortly after receiving this devastating news I began running as a way to deal with the emotional and mental stress I found myself experiencing. After entering my first road race in the spring of 2009 I set my sights on the Falmouth Road Race and entered my name into the lottery for the 2009 race. To my delight I received a number and ran the race that August. I enjoyed every single moment! During the race I was in complete awe of how many runners I saw proudly representing various charities. After the race I began to think of ways in which I could use this new found hobby and stress reliever to also raise awareness and funds to help find a cure for my child and all those suffering from this horrible, and currently incurable illness. Having the Sturge-Weber Foundation represented at the Falmouth Road Race seemed like the perfect fit which led me to contact the race officials last year.
As many of you know, for the first time in the history of the race the Sturge- Weber Foundation was represented in the Numbers-For-Non Profits program in the 2010 Falmouth Road Race. Amazingly, our small team raised over $25,000 our first year out. Thankfully the Sturge-Weber Foundation has been added to the Numbers-For-Non Profits program for the 2011 race and I could not be more excited to run again!
Sturge-Weber Syndrome is a congenital, non-familial disorder of unknown incidence and cause. It is characterized most often, but not always, by a facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber Syndrome can include eye and internal organ irregularities. Currently, there is no known cure for Sturge-Weber Syndrome.
Please consider supporting this cause which is near and dear to my heart. The Sturge-Weber Foundation relies on grass roots efforts such as this one to keep its doors open and provide support to individuals and families around the world who are affected by Sturge-Weber Syndrome and other Port-Wine stain related conditions. The foundation also works closely with many other organizations and medical professionals who are working hard to hopefully one day find a cure.
Your contribution of any amount, as well as your assistance in raising awareness truly means so much. Please help me keep the promise my husband, Octavio and I made to our son, Jameson three years ago.......the promise that we will continue to fight to ensure that he will one day walk this earth cured of Sturge-Weber Syndrome.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too! To read more about Jameson's journey, log on to www.caringbridge.org/visit/jamesonmelo.
**I am also running this race in loving memory of Kellie Kenney, a fellow Sturge-Weber mom who I had the honor of getting to know. Kellie, you will never be forgotten. This one is for you too!**