My niece, Sarah Faith Brewer, was diagnosed with Neuroblastoma on February 8, 2008 at the age of 18 months. Our lives changed forever that day.
Neuroblastoma is a children’s cancer diagnosed in approximately 500 to 1,000 children per year in the USA. Neuroblastoma is a complex tumor of the sympathetic nervous system. The Neuroblastoma in Sarah's body caused her to have something called Opsoclonus Myoclonus Syndrome. OMS is a rare neurological disorder of unknown causes which appears to be the result of an autoimmune process involving the nervous system. It is an extremely rare condition, affecting as few as 1 in 10,000,000 people per year. It affects 2 to 3% of children with Neuroblastoma.
Now nearly four years later, Sarah is doing well. She received several months of chemotherapy and continues to have monthy treatments at John Hopkins Hospital to treat the effects of the OMS. Sarah's battle against the effects of the OMS will be a life-long one.She will most likely continue with her treatments for the rest of her life.
The Believe in Tomorrow Organization is amazing! They have provided so many opportunities to Sarah and our family to form lasting memories during the past four years.
We would love you to join our team on Sunday, April 29th. If you register, before to sign up under the team (Sarah's Brew Crew). If you can’t join us, donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support.