How far would you go to help someone in need? I am willing to go 1,500 miles and I ask you to please sponsor me along this journey.
This summer, once again, I will be embarking on an exciting, life changing, adventure. I will be joining a group of young people who will proudly bike 1,500 miles across the country to help raise funds and awareness for Duchenne Muscular Dystrophy (Duchenne), a devastating, progressive neuromuscular disorder which robs those diagnosed of their independence and eventually their life.
This event is called JettRide 2012. From July 1 to August 3, 2012, our team will bike through 7 states and numerous cities/towns. The ride will take off in Minneapolis, Minnesota, and will end in Point Pleasant, New Jersey. I am riding for Josh Mansheim, the brother of a very close friend. My motivation for participating in the JettRide would be for my MDA campers - I will be riding for each one of them, as well as all the boys with Duchenne that I met on JettRide 2011. Secondly, I will be riding for those affected with Duchenne that I have not met.
What is Duchenne? Duchenne is the most common lethal genetic disorder diagnosed during childhood today. It is a progressive neuromuscular disorder that causes loss of muscle function and independence. Duchenne affects approximately 1 in every 3,500 boys, or 20,000 babies born each year worldwide. Because the Duchenne gene is found on the X chromosome, the disorder manifests primarily in boys. Duchenne affects families of every race and culture. Regardless of family history, Duchenne can occur in any pregnancy. Random spontaneous genetic mutation is the cause of Duchenne in nearly 35% of families affected. No known effective treatment or cure currently exists for Duchenne.
What is the Jett Foundation? The Jett Foundation for Duchenne muscular dystrophy was founded in 2001 by Stephen and Christine McSherry, when their son, Jett McSherry, then 5 years old, was diagnosed with Duchenne muscular dystrophy (Duchenne). The mission of the Jett Foundation is to improve the treatment, quality of life and long term outlook for all individuals affected by Duchenne through research advocacy, education and compassion. After nine years of steady progress in the fight against this dreadful disease, the Jett Foundation is known throughout the country as a leader, funding promising research and as a strong advocate in this battle.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. But if you'd rather send a check, please make it out to the Jett Foundation, with Ty Miller written clearly in the memo and mail to the Jett Foundation, 68 Evergreen Street, Suite 1, Kingston, MA 02364.
Thank you for visiting my fundraising page!
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!