Thank you for visiting my fundraising page.
I re-activated Cheyenne's page in memory of her 3rd year angelversary on the 8th. We raised $150 already! Don' feel obligated to donate if you can't as I know times are tough right now. But maybe you can shop through some of the sites that will donate to Chromosome disorder outreach.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts. Here is her story.
My daughter Cheyenne passed away on October 8th 2008.She was born with a rare chromosome deletion on her 4th chromosome, also known as 4q21.1q21.3
Of course I had never heard of such a thing. I knew about Down's Syndrome, but never heard about deletions, inversions, translocations,duplications, rings, etc... Many, many families and children are deeply affected by this common disorder. Many are lost, like my precious only child, Cheyenne.
CDO envisions a time in the not too distant future when doctors will have a great deal of information available on each and every chromosome disorder. They will be able to tell parents symptoms associated with a particular deletion, duplication or other disorder as well as what not to worry about. It is also our hope that appropriate therapies or other treatments will be recommended specific to particular disorders and that affected individuals will have a much greater chance of a fuller life.
This is a wonderful dream of mine, for my loss to not be in vain. I hope that my sweet daughters life can be honored by helping to make a difference in other children's lives. CDO is a wonderful organization that helped us through many tough times providing resources, information and support. I would also like to thank "Unique" based in the UK for all their help-- rarechromo.org, they too accept donations.
Any sort of donation would be greatly appreciated! No donation is too small. Please help us raise awareness.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support.
You can purchase CDO products at all these stores, they're really trying to raise awareness!
http://www.zazzle.com/CDO_Inc shirts,keychains,stamps,etc
www.banglesofhope.com a beautiful bracelet
www.cafepress.com Cafe Press item featuring the CDO logo
www.themillfudgefactory.com If you purchase some of this crazy-delicious fudge and put the CDO Fundraiser in your cart, you will raise money for CDO!
Search the web with GoodSearch.com and each time you do a search, GoodSearch will donate about a penny to our cause!
Shop online at GoodShop.com and a percentage of each purchase will be donated to our cause! More than 2,400 top stores are participating including Target, Staples, Best Buy and more!