Thank you for visiting our fundraising page!
It has now been 12 years since my dad passed away from complications due to Scleroderma. On Sunday, June 3, our family is once again participating in the annual Scleroderma Walkathon to help raise money for the Scleroderma Foundation so they can continue to help patients and their families cope and fund research to improve treatment and ultimately find the cure.
Scleroderma (or systemic sclerosis) is a chronic, degenerative, autoimmune disease that affects the body's connective tissue due to an overproduction of collagen. The most visible manifestation of the disease is a hardening of the skin, which can deform one's appearance. Progression of the disease occurs at different paces, frequently involving complications of the internal organs. It is a painful, life altering disease that is frequently fatal.
While there is no cure yet for Scleroderma, much progress has been made thanks to the generous contributions of people like you. Donating through this website is simple, fast, totally secure and the most efficient way to support our fundraising efforts.
Many thanks in advance for your support! For more information about Scleroderma, please visit the local chapter’s web page, www.scleroderma.org/chapter/southerncal
Joel
P.S. If you work for an employer that matches gifts, please remember to take advantage of their generosity so your gift will be multiplied.
P.S.S. We’d love to have you to join us at the Walk if you can make it. Highlights of the event include a kidzone with a waterslide and bounce house. Plus, my friend John Wicks and his band The Records are going to “rock the Walk” again this year with original material and other hits of the 70s and 80s. Last year was their first year playing the Walk and their music was a huge highlight of the event, making it one of the best Walks ever! John was in the original incarnation of The Records, which recorded the hit song “Starry Eyes” in the late 1970’s. He has toured worldwide and opened for bands like the Cars, Robert Palmer, Elvis Costello, The Jam and Joe Jackson. So come on down!!
If you want to participate in the walk, you can register right there. There’s a $25 registration fee for adults and a $10 registration fee for kids ages 6 to11. Free for kids under 6. Registration begins at 8:30 am and the walk begins at 10 am.
The address for the walk is:
La Mirada Regional Park, Alicante Road & Adelfa Drive, La Mirada, CA
P.S.S.S. Check this out too!!! Very Cool!!! http://www.johnwicksandtherecords.com/scleroderma.htm