For two years, we've walked to raise money for Cornelia de Lange Syndrome. 

We're doing that this year, too. But we're mixing it up. This October, I'm running as well to raise money for research and support into the genetic condition that affects my gorgeous daughter, Hope, and contributed to the death of my brave firstborn, Will.

After helping my wife, Mo, organize two successful fun walks for CdLS research that raised more than $10,000, I've decided our lives aren't busy enough. So I'm running the Chicago marathon, joining the good folks at Team CdLS for the foundation's largest annual fundraising effort.

This is my first marathon, but I can't think of a worthier cause or a better goal. During those tough, final few miles, I'll be thinking of Will, who passed away in 2005 when he was 89 days old, and looking forward to a squeeze from Hope, the world's greatest hugger, at the finish line.

Thanks in advance for your donations, positive mojo, prayer beads and good thoughts.  

Joel Kurth