The Marfan Syndrome is a genetic condition that affects connective tissue. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs. As many as 1 in 5000 people in the United States is estimated to have this condition, yet few people have heard of it.

In 2005, we discovered that our daughter Anna (now 10) has the Marfan syndrome. She has great doctors and is a tough, happy kid who takes the frequent holter monitor tests, echocardiograms, and eye doctor appointments in stride. We recently completed a 2 year enrollment in a clinical trial sponsored by the National Institute of Health examining the impact of a specific kind of medication on the Marfan Syndrome (Aorta enlargement primarily). There are many questions about Marfan Syndrome that have yet to be answered, and exciting new treatments not yet explored. We want to help, and we would like to ask for your help as well.

'Have Heart' is the National Marfan Foundation slogan. In 2009, I ran 4 marathons as a part of a fund raiser to support the NMF. Many of you reading this message have already donated in support of this cause. For that, we thank you from the bottom of our hearts. Together, we have raised more than $10,000 to support the NMF in their mission and efforts to raise money for Marfan Syndrome research, awareness, and education.

This fall, I will be running the Marine Core Marathon on team NMF with my friend Matt Wowk. Matt and his wife Molly have generously and graciously joined our ongoing efforts to support the NMF. Please consider donating to support this cause that is so important to us!

Thank you, God bless, and Have Heart.