Thank you for visiting my fundraising page for Cornelia de Lange Syndrome Foundation, Inc.!

Emma will be helping to host the Motorcycle Ride for CdLS on May 12th. As she is a bit young to host her own page, I told her I would do my best!

Neither of us ride motorcycles, but we're working to organize the event, and we will be there to tell our story and ensure a successful event.

Please consider supporting our fundraising efforts. The foundation has done a great job of letting us know we're not the only ones out there living with this condition and connecting us with other famalies. We are eagerly looking forward to the National CdLS Foundation conference in June where we will have a chance to meet other CdLS famalies

Thank you for your support!

Josh, Becky, Charlie and Emma