Julie Shimko's Page
Thank you for visiting my fundraising page!
I am fundraising in honor of Lily, the daughter of a friend, and the niece of my best friend. Rett Syndrome is a rare debilitating genetic disorder that occurs almost exclusively in girls. It’s caused by a random gene mutation every baby girl has an equal chance of acquiring. After 6 to 18 months of apparently normal development, girls with Rett Syndrome develop severe problems with language and communication, learning, coordination, and other brain functions. Because of Rett Syndrome, Lily cannot talk, walk, or use her hands in a purposeful way.
Though she is profoundly disabled, Lily is a bright, cheerful, loving little girl who makes great eye contact and loves her family so much. Her beautiful smile lights up a room and her sparkling blue eyes show that she can understand much of what people say. She is a special angel and brings so much joy to everyone's lives. Lily requires around the clock care and many therapies, but we hope some day she can break free from Rett Syndrome and live the life that is dreamed for her. Currently, researchers are working hard to find a cure for Rett Syndrome.