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New York City Local Group Of The Ehlers National Foundation

EDS NYC: Support for Ehlers Danlos Syndrome in Metro NYC

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EDS NYC: Support for Ehlers Danlos Syndrome in Metro NYC

EDS NYC is a group dedicated to supporting those affected by Ehlers-Danlos Syndrome. We raise funds to support the initiatives of our group, contribute to the EDNF and help fund desperately needed genetic research. We've been around for a few years and have grown more rapidly as Ehlers-Danlos pushes its way to the front of the medical community, leading to more frequent diagnosis. We're still a long way from where we'd like to be, but there are a number of different organizations fighting for the visibility of Ehlers-Danlos Syndrome. This gives us a bit of hope.

If you'd like to support us, there are a number of ways to do so. You could donate directly to us here, raise money while searching the web or shopping for things you would have bought anyway, sell stuff on Ebay, buy a shirt/mug/whatchamacallit or donate your used printer cartridges (we're ID#51542).   You could also get in touch with us and come to one of our meetings. You'll meet other people with EDS and learn stuff that isn't effectively communicated online. It's fun to hear other people's stories and the resounding laughter/groans when we can all relate. Helpful, too, in reaching the expanse of knowledge with which EDS patients must arm themselves.


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