Seven years ago I went through the genetic testing process and found out that I have the genetic mutation that will cause Huntington's disease. In June 2006 I attended my first HDSA Convention and joined the National Youth Alliance. This is where I met other young people who grew up in a family affected by HD and understood my situation and experiences. I am grateful for having the support and inspiration from this group.
The National Youth Alliance is a group of youth and young adults from around the USA, whose mission is to make their generation the last to ever have to live with Huntington’s Disease. Creating a support network, raising money, and increasing educational opportunities are just a few benefits of the NYA. Over the past few years the NYA has grown to more than 250 members from around the country and over seas.
The goal of the NYA is to help support, educate, and motivate youth to get involved in the battle against HD.
If you are between the ages of 9 and 29, are personally affected, a friend, relative, or just interested in the HD community, the NYA is here for you! Visit www.hdsa.org/nya for more information.
Thank you for visiting my Fundraising Page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to our fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
If you're really in for a challenge, start your own fundraising page through FirstGiving.com and join me at the starting line in Miami this July www.huntingtonsdiseasefl.org.
On July 29, 2012, I am participating in the Huntington's Disease Triathlon in honor of my friends in the Huntington's Disease Society of America National Youth Alliance.