Donate
$150,000
goal
$64,713
Raised so far

43 % to goal

CHILDRENS HOSPITAL AND HEALTH SYSTEM FOUNDATION

Kelleigh's Cause

Donations as of November 28, 2014:

$43,909.66 Raised Offline
$20,803.12 Raised Online
$64,712.78 Total Raised

Kelleigh's Cause

The Background

At the age of four, after many unanswered questions regarding the growing discoloration of the right side of her head, ear and neck, Kelleigh Marie was diagnosed with a rare, inoperable and life threatening birth defect known as arteriovenous malformations (AVMS). Our family was not prepared to hear the team of highly regarded specialists refer to Kelleigh's AVMS as extensive and affecting all of the major blood vessels of the entire right side of her head and neck, as well as her airway. We were told that she was at risk of hemorrage, severe disfiguration , as well as, congestive heart failure and that there was no cure.

Since her diagnosis, world reknown Vascular Interventional Radiologist Dr. Patricia Burrows has meticulously performed countless hours of highly specialized treatment several times a year in an attempt to control the progression of Kelleigh's birth defect and to keep her out of congestive heart failure while we wait for the medical research to develop the necessary chemotherapy agent to specifically target Kelleigh's disease.

The number of procedures Kelleigh has endured are too numerous to count and each time she has been at risk of blindness, paralysis, stroke and death. In addition to the procedures performed by Dr. Burrows, Kelleigh has had numerous set backs due to infection and pain because of tissue destruction related to the blood vessels causing abnormal or lack of blood flow. At age 6 she required a scalp resection because of the pain caused by dead scalp tissue. At age 7, she had a life threatening reaction to a chemotherapy agent used in an attempt to help control the progression of the abnormal blood vessel growth. She spent the week preceding her First Holy Communion in the ICU. The priest who performed the Annointing of the Sick on that Monday was the same priest who tearfully gave her First Holy Communion in the following Saturday when Kelleigh was given a 2 hour leave of absence from the ICU and joined her classmates at the church. At age 10, the AVMs began to seriously affect her airway and she required a tracheostomy. Another month of school missed.

Through all of this Kelleigh has demonstrated amazing Faith, Hope and Courage. Even in her darkest hours she has never given up. She is an honor student who dreams of becoming a doctor and Varsity athlete who refuses to let her disease define her.

2014 - The Year We Continue the Fight to Find a Cure

This year Dr. Burrows, in partnership with the Children's Hospital of Wisconsin, has begun research to find a cure for Kelleigh and others like her. In order to do so, we must raise $150,000 to fund research for a new drug therapy.

Please help Kelleigh and our family by donating to Kelleigh's Cause, a fund set up through Children's Hospital of Wisconsin.

 

Supporters

Comment Donation
Alia Mahmood
$18.12
Anonymous The Color Run Lansing Mi 7/12/14
$5,095.00*
Anonymous Runner Donations The Color Run Lansing Mi 7/12/14
$1,085.00*
Anonymous The Blue Zone at The Color Run 8/2014 Denver CO
$1,400.00*
Crouse Medical Practice PLLC Jeans Day/Bake Sale
$586.00*
Nick Ziobro Benefit Concert An evenng of Faith, Friends and Family
$5,578.66*
Alia Mahmood Together we can and will make a difference!
$610.00*
Nick Ziobro Concert Friends, Family, Faith!
$541.00*
Antonina Lunetta
$10.00
Logan Bartels
$25.00
Amanda Dean
$25.00
Maureen Puchalski Good luck in college! Thinking of you!
$200.00
Katie Gerdes
$25.00
Maria & Thom Theriault
$100.00
Peter and Kathy Stockmann
$25.00
Dr. & Mrs. Mark & Marci Erlebacher Could not make the concert tonight, made the donation instead!
$50.00
William and Donna Burns Best of luck with the fundraiser tonight with Nick Ziobro
$500.00
Kevin Wood This is my ice bucket challenge donation!!!
$25.00
Mary Oonk
$50.00
Mother Nature Pet Supply, Manlius, NY
$100.00
Kara and Phil Douma Love you you all, Gustafson Family!
$100.00
fish honoring Jessica Peck
$50.00
The Color Run Copper Mountain
$1,300.00*
The Dacy Family in memory of Debra J Gogliardo
$200.00
William Maxwell Thank you for sharing your story at St. Ann's Church, Manlius, NY today, 6/8/14. You are a brave young woman with great faith.
$50.00
Anonymous In honor of Debra J Klein Gogliardi
$50.00
Amy Jo & Ryan Hennig
$100.00
Robert Zahradnik-Mitchell
$100.00
Emily Baxter (Clisch)
$50.00
Jack Cahill
$100.00
Anonymous Generous Anonymous Donation at the Syracuse Catholic Schools Light The Way Dinner
$550.00*
Anonymous
$1,950.00*
MOA Architecture Denver CO
$100.00*
Paul and Mary Lou Heberlein
$100.00
The Color Run Milwaukee An amazing day in the Blue Zone!!!
$1,000.00*
Kerry and Barry Koury
$100.00
Susie Moore You are an amazing young woman!
$40.00
Anonymous
$50.00
The Color Run Lansing Michigan A HUGE THANK YOU to all of the runners and volunteers who came out to support Kelleigh's Cause!!!!
$7,854.00*
St. Joseph's Medical PC PROUD TO RAISE AWARENESS AND FUNDS FOR AVM RESEARCH!
$2,210.00*
Robert W. and Raj A. King
$50.00*
Hospodar Family Hi Kelleigh, you are an inspiration to us all, may God continue to bless you, your family , and Dr. Burrows. Take good care...
$200.00
Mark A, and Dr. Julie Colvin
$1,000.00*
Lois Fedele
$50.00
Brittany Neville I love you Kelleigh!! Your strength is amazing!! You are in my prayers!
$50.00
Thomas Hazen
$500.00
Anonymous
$50.00
Wheeler Trigg O'Donnell Foundation Hi, Kelleigh - The friends and co-workers of your sister Kaelyn send you our best wishes. You have an amazing spirit and a generous heart.
$2,100.00
Anonymous Wishing you all the best - a friend from WTO in Denver
$100.00
The Foster Family Looking forward to the color run tomorrow. XO.
$250.00

Donation Summary

Raised Offline
$43,910
Raised Online
$20,803
Total Raised
$64,713
Report offensive content