Donate
$150,000
goal
$46,914
Raised so far

31 % to goal

CHILDRENS HOSPITAL AND HEALTH SYSTEM FOUNDATION

Kelleigh's Cause

Donations as of April 21, 2014:

$27,714.00 Raised Offline
$19,200.00 Raised Online
$46,914.00 Total Raised

Kelleigh's Cause

The Background

At the age of four, after many unanswered questions regarding the growing discoloration of the right side of her head, ear and neck, Kelleigh Marie was diagnosed with a rare, inoperable and life threatening birth defect known as arteriovenous malformations (AVMS). Our family was not prepared to hear the team of highly regarded specialists refer to Kelleigh's AVMS as extensive and affecting all of the major blood vessels of the entire right side of her head and neck, as well as her airway. We were told that she was at risk of hemorrage, severe disfiguration , as well as, congestive heart failure and that there was no cure.

Since her diagnosis, world reknown Vascular Interventional Radiologist Dr. Patricia Burrows has meticulously performed countless hours of highly specialized treatment several times a year in an attempt to control the progression of Kelleigh's birth defect and to keep her out of congestive heart failure while we wait for the medical research to develop the necessary chemotherapy agent to specifically target Kelleigh's disease.

The number of procedures Kelleigh has endured are too numerous to count and each time she has been at risk of blindness, paralysis, stroke and death. In addition to the procedures performed by Dr. Burrows, Kelleigh has had numerous set backs due to infection and pain because of tissue destruction related to the blood vessels causing abnormal or lack of blood flow. At age 6 she required a scalp resection because of the pain caused by dead scalp tissue. At age 7, she had a life threatening reaction to a chemotherapy agent used in an attempt to help control the progression of the abnormal blood vessel growth. She spent the week preceding her First Holy Communion in the ICU. The priest who performed the Annointing of the Sick on that Monday was the same priest who tearfully gave her First Holy Communion in the following Saturday when Kelleigh was given a 2 hour leave of absence from the ICU and joined her classmates at the church. At age 10, the AVMs began to seriously affect her airway and she required a tracheostomy. Another month of school missed.

Through all of this Kelleigh has demonstrated amazing Faith, Hope and Courage. Even in her darkest hours she has never given up. She is an honor student who dreams of becoming a doctor and Varsity athlete who refuses to let her disease define her.

2014 - The Year We Continue the Fight to Find a Cure

This year Dr. Burrows, in partnership with the Children's Hospital of Wisconsin, has begun research to find a cure for Kelleigh and others like her. In order to do so, we must raise $150,000 to fund research for a new drug therapy.

Please help Kelleigh and our family by donating to Kelleigh's Cause, a fund set up through Children's Hospital of Wisconsin.

 

Supporters

Comment Donation
Amy Jo & Ryan Hennig
$100.00
Robert Zahradnik-Mitchell
$100.00
Emily Baxter (Clisch)
$50.00
Jack Cahill
$100.00
Anonymous Generous Anonymous Donation at the Syracuse Catholic Schools Light The Way Dinner
$550.00*
Anonymous
$1,950.00*
MOA Architecture Denver CO
$100.00*
Paul and Mary Lou Heberlein
$100.00
The Color Run Milwaukee An amazing day in the Blue Zone!!!
$1,000.00*
Kerry and Barry Koury
$100.00
Susie Moore You are an amazing young woman!
$40.00
Anonymous
$50.00
The Color Run Lansing Michigan A HUGE THANK YOU to all of the runners and volunteers who came out to support Kelleigh's Cause!!!!
$7,854.00*
St. Joseph's Medical PC PROUD TO RAISE AWARENESS AND FUNDS FOR AVM RESEARCH!
$2,210.00*
Robert W. and Raj A. King
$50.00*
Hospodar Family Hi Kelleigh, you are an inspiration to us all, may God continue to bless you, your family , and Dr. Burrows. Take good care...
$200.00
Mark A, and Dr. Julie Colvin
$1,000.00*
Lois Fedele
$50.00
Brittany Neville I love you Kelleigh!! Your strength is amazing!! You are in my prayers!
$50.00
Thomas Hazen
$500.00
Anonymous
$50.00
Wheeler Trigg O'Donnell Foundation Hi, Kelleigh - The friends and co-workers of your sister Kaelyn send you our best wishes. You have an amazing spirit and a generous heart.
$2,100.00
Anonymous Wishing you all the best - a friend from WTO in Denver
$100.00
The Foster Family Looking forward to the color run tomorrow. XO.
$250.00
Anonymous
$50.00
Tim Gustafson and family We love you Kelleigh!
$125.00
Cindy Wallace
$25.00
Kim
$20.00
Jim, Carol & David
$200.00
Anonymous Wishing you all the best!
$50.00
Anonymous
$25.00
Anonymous
$40.00
Anonymous
$100.00
Thomas Adelman Still so proud to be a 2013 Kelleigh's Cross STA honoree!
$100.00
Anonymous
$25.00
C.Stevens "Challenges are what make life interesting, overcoming them is what makes life meaningful" 3
$30.00
Anonymous
$20.00
David Meyer and Jenn Matheson This is the year a cure is found!
$25.00
Anonymous
$250.00
Anonymous Wishing you all the best from Portland, Oregon!
$20.00
Anonymous
$100.00
Anonymous I hope this small donation from Denver will help in finding a cure. All the best!
$20.00
Unique Fabricating Our thoughts and prayers are with you and your family, Kelleigh
$1,000.00
Brad, Cathy and Holly We will beat this!!
$1,000.00
Anonymous Kelleigh, I pray for you often. Best of luck in your treatment, and in reaching your fundraising goal.
$25.00
Catholic Schools Dress Down Days A huge thank you to the 23 Catholic school in Michigan and New York who so generously participated
$12,500.00*
Bishop Grimes High School Senior Class "To the charity close to all of our hearts".
$500.00*
Caitlin Dillon Praying for you, Kelleigh, and your family!
$15.00
Wheeler Trigg O'Donnell Foundation Best wishes to Kelleigh from her sister Kaelyn's employer, Wheeler Trigg O'Donnell.
$100.00
Lisa Delaney God Bless You Kelleigh! We are dealing with this in our family as well.
$100.00

Donation Summary

Raised Offline
$27,714
Raised Online
$19,200
Total Raised
$46,914
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