Raised so far

45 % to goal


Kelleigh's Cause

Donations as of April 02, 2015:

$43,909.66 Raised Offline
$22,978.12 Raised Online
$66,887.78 Total Raised

Kelleigh's Cause

The Background

At the age of four, after many unanswered questions regarding the growing discoloration of the right side of her head, ear and neck, Kelleigh Marie was diagnosed with a rare, inoperable and life threatening birth defect known as arteriovenous malformations (AVMS). Our family was not prepared to hear the team of highly regarded specialists refer to Kelleigh's AVMS as extensive and affecting all of the major blood vessels of the entire right side of her head and neck, as well as her airway. We were told that she was at risk of hemorrage, severe disfiguration , as well as, congestive heart failure and that there was no cure.

Since her diagnosis, world reknown Vascular Interventional Radiologist Dr. Patricia Burrows has meticulously performed countless hours of highly specialized treatment several times a year in an attempt to control the progression of Kelleigh's birth defect and to keep her out of congestive heart failure while we wait for the medical research to develop the necessary chemotherapy agent to specifically target Kelleigh's disease.

The number of procedures Kelleigh has endured are too numerous to count and each time she has been at risk of blindness, paralysis, stroke and death. In addition to the procedures performed by Dr. Burrows, Kelleigh has had numerous set backs due to infection and pain because of tissue destruction related to the blood vessels causing abnormal or lack of blood flow. At age 6 she required a scalp resection because of the pain caused by dead scalp tissue. At age 7, she had a life threatening reaction to a chemotherapy agent used in an attempt to help control the progression of the abnormal blood vessel growth. She spent the week preceding her First Holy Communion in the ICU. The priest who performed the Annointing of the Sick on that Monday was the same priest who tearfully gave her First Holy Communion in the following Saturday when Kelleigh was given a 2 hour leave of absence from the ICU and joined her classmates at the church. At age 10, the AVMs began to seriously affect her airway and she required a tracheostomy. Another month of school missed.

Through all of this Kelleigh has demonstrated amazing Faith, Hope and Courage. Even in her darkest hours she has never given up. She is an honor student who dreams of becoming a doctor and Varsity athlete who refuses to let her disease define her.

2014 - The Year We Continue the Fight to Find a Cure

This year Dr. Burrows, in partnership with the Children's Hospital of Wisconsin, has begun research to find a cure for Kelleigh and others like her. In order to do so, we must raise $150,000 to fund research for a new drug therapy.

Please help Kelleigh and our family by donating to Kelleigh's Cause, a fund set up through Children's Hospital of Wisconsin.



Comment Donation
Rita & Rick Berning
Cathy, Brad and Holly
Pete and Sandy Hinz Enjoyed seeing your family Christmas Eve at STA!
mary adelman So great to see you last night, Kelleigh! Happy second day of Christmas! Have fun skiing!
Rachel Heberlein Merry Christmas(:
Alia Mahmood
Anonymous The Color Run Lansing Mi 7/12/14
Anonymous Runner Donations The Color Run Lansing Mi 7/12/14
Anonymous The Blue Zone at The Color Run 8/2014 Denver CO
Crouse Medical Practice PLLC Jeans Day/Bake Sale
Nick Ziobro Benefit Concert An evenng of Faith, Friends and Family
Alia Mahmood Together we can and will make a difference!
Nick Ziobro Concert Friends, Family, Faith!
Antonina Lunetta
Logan Bartels
Amanda Dean
Maureen Puchalski Good luck in college! Thinking of you!
Katie Gerdes
Maria & Thom Theriault
Peter and Kathy Stockmann
Dr. & Mrs. Mark & Marci Erlebacher Could not make the concert tonight, made the donation instead!
William and Donna Burns Best of luck with the fundraiser tonight with Nick Ziobro
Kevin Wood This is my ice bucket challenge donation!!!
Mary Oonk
Mother Nature Pet Supply, Manlius, NY
Kara and Phil Douma Love you you all, Gustafson Family!
fish honoring Jessica Peck
The Color Run Copper Mountain
The Dacy Family in memory of Debra J Gogliardo
William Maxwell Thank you for sharing your story at St. Ann's Church, Manlius, NY today, 6/8/14. You are a brave young woman with great faith.
Anonymous In honor of Debra J Klein Gogliardi
Amy Jo & Ryan Hennig
Robert Zahradnik-Mitchell
Emily Baxter (Clisch)
Jack Cahill
Anonymous Generous Anonymous Donation at the Syracuse Catholic Schools Light The Way Dinner
MOA Architecture Denver CO
Paul and Mary Lou Heberlein
The Color Run Milwaukee An amazing day in the Blue Zone!!!
Kerry and Barry Koury
Susie Moore You are an amazing young woman!
The Color Run Lansing Michigan A HUGE THANK YOU to all of the runners and volunteers who came out to support Kelleigh's Cause!!!!
Robert W. and Raj A. King
Hospodar Family Hi Kelleigh, you are an inspiration to us all, may God continue to bless you, your family , and Dr. Burrows. Take good care...
Mark A, and Dr. Julie Colvin
Lois Fedele

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