Thank you for visiting my fundraising page!
As many of you know, in March of 2008 my then 18 month old grandson, Jameson was diagnosed with Sturge-Weber Syndrome. For the first time in the history of the Falmouth Road Race the Sturge- Weber Foundation was represented in the Numbers-For-Non Profits program in the 2010 race. Amazingly, our small team raised over $25,000 our first year out. Thankfully the Sturge-Weber Foundation has been added to the Numbers-For-Non Profits program for the 2011 race and I will be running again!
Sturge-Weber Syndrome is a congenital, non-familial disorder of unknown incidence and cause. It is characterized most often, but not always, by a facial birthmark and neurological abnormalities. Other symptoms associated with Sturge-Weber Syndrome can include eye and internal organ irregularities. Currently, there is no known cure for Sturge-Weber Syndrome.
Please consider supporting this wonderful cause. The Sturge-Weber Foundation relies on grass roots efforts such as this one to keep its doors open and provide support to individuals and families around the world who are affected by Sturge-Weber Syndrome and other Port-Wine stain related conditions. The foundation also works closely with many other organizations and medical professionals who are working hard to hopefully one day find a cure.
Your contribution of any amount, as well as your assistance in raising awareness truly means so much. Please help my son, Octavio and daugther-in-law, Jessica keep the promise they made to my grandson, Jameson three years ago.......the promise that they will continue to fight to ensure that he will one day walk this earth cured of Sturge-Weber Syndrome.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too! To read more about Jameson's journey, please log on to www.caringbridge.org/visit/jamesonmelo.