Our daughter Mackenzie passed away of Cockayne Syndrome, February 23, 2010. She was 5 years old when she was called back to heaven. She was "Our Borrowed" Angel.
Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, premature aging, microcephaly, sensitivity to sunlight and developmental delays just to name a few. Because of the multiple complex medical issues children with this syndrome have a shortened lifespan on average (4-7 years). There are only 200-300 children in the World with this rare genetic syndrome
For those of you that had the opportunity to meet Mackenzie know she was a true angel. Her simple smile could light up a room. She was and always will be a true blessing to us, and we were honored to have her in our lives.
The Share and Care Cockayne Syndrome Network is a 501(c)(3) worldwide support organization for families of children with Cockayne syndrome. This organization provides much needed support to children and families dealing with Cockayne Syndrome. Its goal is to also raise awareness and support medical research.
This year we are dedicating our walk to Mackenzie. The Mackenzie Kintner Memorial Butterfly Walk for CS is a walk-a-thon event aimed at raising funds for Share & Care Cockayne Syndrome Network.
The walk will be held on Saturday, October 16th at SanfordRiver Walk / FortMellonPark, in Historic Downtown Sanford, Florida. The start of the walk will be at FortMellonPark.
Walk day registration starts at 4:30pm, and the walk begins at 5:00pm.
Please join my family in our commitment to help families and children living with this devastating syndrome. With your help we can and will make a difference in the fight for Cockayne Syndrome research and awareness.
You can Register for the Walk or Make a Donation by Selecting Join this Team or Sponsor Us Now at the top of this page. Let's Do It For Mackenzie!
If you have any questions, contact Kim Kintner at:
Thanks in Advance!
Scott, Kim, Brayden, & Marissa