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FAMILIES OF SPINAL MUSCULAR ATROPHY

7th Annual RoeFest Cure SMA Race-N-Roll
Training buddies: Charlie, Lily, Kim & John

Charlie's Crew

Hi, We are Charlie, Lily, Kim & John Sykora.  We are participating in the 7th Annual Cure SMA Walk & roll on Saturday, October 6, 2007 in honor of Charlie who has Spinal Muscular Atrophy (SMA).  We are going to walk, run or roll to help raise money to find a cure.   

SMA is a genetic disease that destroys the nerves controlling muscle movement which affects crawling, walking, head and neck control, swallowing and breathing.  Currently, there is no cure or treatment for SMA.

BUT A TREATMENT OR CURE IS ON THE HORIZON....88 cents of every dollar raised goes to SMA research.  We are asking for your help.  FSMA has previously funded 20 million dollars toward SMA research and has committed an additional 15 million over the next 3 years. 

Thank you for visiting our Personal Fundraising Page. Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to our fundraising efforts. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

TOGETHER WE WILL FIND A CURE!

A special Thank You to all our friends and family who have donated off-line:  Brad and Denise Bates, Nancy Buchmann, Don & Judy Engelthaler; Carrie Hill & Drew Fladung, Tessa & Fred Ghali, Sandra Hanson, Paul Hoffman, Ken & Mimi Iverson, Phyllis Kemper, Tom & Ann Kerkenbush, Tim & Kim Kobe, Barb & Ed Lemons, Don & Judy Lind, Terre and C.J. Manne, Joyce & Paul Richards, Debbie Richmond, Joyce Ruisch, Tom & Betty Scott, Arlene & James Simpson, Donna Singleton, Barb & Bob Sykora, Mary & Tim Sznewajs, Amy Weindel and Dennis & Jean Zwach.

Thank you,

Charlie, Lily, Kim & John Sykora

www.our-SMA-angels.com/Charlie  or www.caringbridge.org/ks/charlie

 

Supporters

Comment Donation
rusty and lou we always want to do what we can for mr. charlie!!
$100.00
Gary Godbout We love you guys!
$25.00
Cheryl Beck Go Charlie's Crew-Wish we could be there.
$60.00
Heidi Isaak Go Charlie! Have fun Sykora Family. We will be thinking of you toomorrow.
$50.00
Mona Patterson Charlie, even though we can't walk this year-we'll always be in your crew! XXOO M,R,A&S
$100.00
the alfred family in honor of charlie & the sykora family!!
$25.00
John and Mollie Great work Charlie! Have fun.
$500.00
Aunt Kara and Uncle Mike McDowell We love you Charlie!!!!!!
$200.00
Jen, Steve, Blaise & Sophie Bishop Charlie, Good luck! Love, Hugs & Kisses from Dallas!
$50.00
Steve & Tracey Fritz
$25.00
John & Janice Hanahan Good luck and have fun!
$100.00
The Days Best wishes to the Sykoras!
$500.00
Jami Kay Greetings and love to the Sykora family !
$500.00
Sarah Hofstra I'm excited and honored to walk with Charlie's Crew!
$50.00
Kyrianna Krzystek (daughter of Kirsten Dotson) We 4-year-olds have to stick together & stick up for one another! GO CHARLIE!
$50.00
The Hart Family (Lucy) GO CHARLIE, LILY, KIM & JOHN!!! I still love them Royals (ha!)
$100.00
Michelle, James, & Malorie Fox Good luck Charlie!! Big hugs from Michigan!
$25.00
Ann-Marie, Brian, Jenna and Brooke Sheely Good luck Charlie and crew!! We're cheering from Texas!
$50.00
Terry Foster Great job, Charlie's Crew!!!
$100.00
The Wimberlys Have a great race!!
$50.00
The Kincaid Family Let's Roll! Go Charlie!
$50.00
Christy, Mike, Brendon & Aidan Flannery We'll be cheering you on from North Carolina!
$25.00
Christy and David Staker Go, Charlie! Hugs to your family!
$50.00
Dean & Tammy Oskvig Thinking of you
$50.00
Mike, Jennifer, Alex and Julia King Go Charlie Go!
$50.00
Carol, Bryan and Jakie We love you and think of you all the time!
$500.00
Deke Go Charlie!
$25.00
jennifer price (Benjamin's MOM) Blessings to Charlie and your family
$50.00

Donation Summary

Raised Offline
$0
Raised Online
$3,460
Total Raised
$3,460
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