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$2,600
goal
$2,706
Raised so far

104 % to goal

SJOGRENS SYNDROME FOUNDATION INC

2011 Country Music Marathon and Half-Marathon Nashville, Tennessee

Donations as of November 21, 2014:

$185.00 Raised Offline
$2,520.92 Raised Online
$2,705.92 Total Raised

2011 Country Music Marathon and Half-Marathon

Kirk Beckendorf's Fund Raising Page for Sjogrens

 
“My story with Sjogren's Syndrome began in the late 1980's. It began with an extremely dry mouth.”
Nancy Beckendorf
 
Thank you for visiting this webpage to support my efforts to raise funds in honor and support of my mother, Nancy Beckendorf, who suffers from Sjogren’s Syndrome. Read her story below. As a member of Team Sjogren’s I am in training for the Nashville Country Music Marathon to raise funds for the Sjogren’s Foundation  to support their efforts of medical research, patient support and building awareness about Sjogrens. Many of you have provided my Mom and my Dad (Sjogren’s impacts his life also) with support through the many years that Sjogren’s has impacted their lives and I thank you for that.
 
Donating through this website is simple, fast, secure and tax deductible.
 
 
Sjögren’s is an autoimmune disease in which a person's white blood cells attack their moisture-producing glands; destroying tear and salavary glands and damaging other organs. There is no cure and it afflicts 4 million people in the U.S.
 
Nancy
"My eyes have been of great concern for years. Many weeks have been spent on the recliner or couch with severe eye pain and my eyes covered with wet cloths.  Two things that I put in my eyes twice a day are Restasis drops and a serum that is made from my own blood.”
 
 
Sjogren’s destroys the body’s tear producing glands, so the eyes have no moisture.  
 
Nancy
“Eye infections and eye ulcers have severely damaged my eyesight. I have to be careful to stay out of the wind and wear dark shades in the sun. I never know when an eye problem will cause excruciating pain- imagine sand paper in your eyes.”
 
 
Sjogren’s destroys the saliva producing glands.
 
Nancy
 “My dry mouth also causes problems. Eating can be a problem. I cannot eat hot and spicy foods, and if I eat dry foods, I need plenty to drink. Without moisture in your mouth, your teeth decay easily. I have had many teeth crowned several teeth pulled. If I lose any more, I will have to have implants. Dentures cause sores in a dry mouth.”
 
 
Sjogren’s effects extend throughout the body impacting other organs.
 
Nancy
 “I have had a number of week long stays in the hospital due to complications related to Sjogrens. I have vasculitis and am easily fatigued, but I feel fortunate because no other organs have been affected.
 
 
Few things impact the life and activities of a marriage partnership like an incurable disease.
 
Arlie
“Sjogren’s is also a lifestyle changing condition for the spouse. Early on I felt helpless when she experienced severe eye pain, had difficulty eating, experienced chronic fatigue, developed sores from vasculitis and other symptoms.”
 
 
Actions and attitude are critical.
 
Arlie
 “With all she has experienced, we still enjoy a full life together; being very involved in volunteering, church and service organizations. And we still travel. We just adapt and may go a little slower sometimes, always with a full emergency medicine chest, and even a small refrigerator for medication, but we keep going.” 
 
 
Yes they do keep on going. The picture of them on this page was taken a few months ago while visiting us and hiking in the mountains of eastern Tennessee.
 
Nancy
My husband, family and doctors are very supportive and are always there to help me when needed.”
 
Please donate to support my mother; and the Sjogrens Foundation's efforts in raising awareness of  and funding research towards medical advancement in the diagnosing and treatment of Sjogren's.
 
View my training log here.
 
 

Supporters

Comment Donation
Ron and Karen Downing Your parents are such a blessing to all of us
$200.00
Marvin and Vada Beckendorf
$25.00*
Grace Ackerman Parks Good job, Kirk!
$79.00
Gordon and Linda Stanton We know your Mom and Dad appreciate your running.
$25.00
Bruce Hillegeist I pray for a cure for all suffering with this disease. I give my gift in honor of Nancy Beckendorf.
$50.00
Pam Meier What a great cause and reason to run. Enjoy the race- will be thinking of you.
$50.00
Darleen Schauer Enjoy the marathon and thanks for doing this for your Mom and Dad.
$50.00
Gay and Steve Run strong for your mom, Kirk
$30.00
Anonymous Good cause Kirk. Can you cigar up while you run?
$50.00
Calvin Beckendorf
$40.00*
Carol Coe
$20.00*
Donna Ashley Thanks for sharing this with me. Have a great run!
$25.00
Anonymous Good luck and have fun
$100.00
The Roberts Thank you, Kirk!
$50.00
Jane & Stephen Hebert Thanks for doing this, Kirk. Have a great race!
$100.00
David Alward
$50.00
Bryan and Lanelle Brown Your folks are great, Kirk. Thanks for doing this and Good Luck!
$26.92
Connie and Terry Weirich Good Luck Kirk!!!
$25.00
Kenny and Ann Embry I love your mom and dad! God bless and have a great race :)
$50.00
The Gordon's
$50.00
Anonymous Good luck Kirk! We wish you a great run and your mom the best!
$25.00
Dan and Debra Baggett We are church friends of Nancy and Arlie and think they are great! Good luck with your run.
$50.00
Greg and Ashley Carter We go to church with your parents and love them! Good luck in your run...you will be in our prayers
$25.00
Joe K. Hope you have a great run! As a fellow marathoner I will be anxious to hear the details...
$25.00
Bob Hansen
$100.00*
Joyce and Jerry
$75.00
Dorothy & Elmer Beckendorf Kirk we are proud of doing this, hope you have a good run
$150.00
Mom & Dad We are proud of you. Thanks. Have a great run. Love ya.
$150.00
Patricia & Baxley Your Louisiana cousins cheer you on!
$50.00
Robert and Janice Burns We are getting in a little late, but hope you have a great run!
$50.00
Mr. Bill Your mom is a neat lady!
$50.00
Janet & Bob Fish God bless you for doing this to help your Mom. She & your Dad are very, very special to us.
$50.00
Sally & Jim Moseley Thanks for your efforts - we love your Mom and Dad!
$50.00
Terry and Mary Bice Good Luck with your Donation Process
$50.00
Rolf & Shirley Kerr Run hard and we love your folks
$100.00
Pat & Tom Becker We love your Mom and Dad! We will pray for you during your training and your run!!
$25.00
Shelley Brower Run, Kirk, run!
$20.00
Kim Holt Good luck on your run. Thank you for the email
$75.00
Lynn Pace Bristow Happy to do this for your wonderful mom and dad!
$25.00
Mary Ann Troyer Good luck on your run!
$25.00
Mildred Beckendorf Powell This is such a Great Cause... Thank you Kirk.
$25.00
Nancy Spillane Have a great run!
$20.00
Gary Gracey Good luck Kirk! What a great cause. I'll be watching that training log.
$80.00
Kenneth W. Cardwell quite an undertaking Kirk
$40.00
Jerry Thomas You are a good son!!! Kick butt on the run!!!!!!
$35.00
Anonymous
$50.00
Bronwen Yay Kirk - have a great run for a great cause!
$25.00
Dee Adams Go Kirk!
$25.00
Anonymous
$50.00
Anne Run, Run, Run!!!!
$40.00

Donation Summary

Raised Offline
$185
Raised Online
$2,521
Total Raised
$2,706