Thank you for visiting my fundraising page to benefit The Sturge-Weber Foundation.
Kori was diagnosed with Sturge-Weber Syndrome on Monday, August 2, 2010, after suffering five seizures in less than 48 hours. An MRI conducted confirmed a stain on her brain. She has a wonderful team of doctors who saw us through the darkest times at Children's Hospital of Michigan, and Port Huron Hospital.
We feel very fortunate to have the support of everyone who knows us, but we also know the road is going to be a long, tough one for our Little Miss Sunshine. With your help, every dollar -- no every penny -- will make that road a little less tough on her, and everyone else who suffers from this rare neurological disorder.
Kori underwent a hemispherectomy on Oct. 18, 2011, after her seizures returned in full-force during the summer months. In the time since, she has regained most of her strength, has relearned how to walk and is happier now than she ever was before! She is the inspiration in our lives, and I hope all who donate to this wonderful foundation will be inspired by all of the amazing people who have SWS!