I was diagnosed with Lupus at the early age of 14, when "lupus" was virtually unheard of. Skin rashes, joint pain & swelling, toxic medications and frequent hospitalizations are no fun when you're a young teenage girl. People would ask "What's Lupus?" and it was always so difficult to explain. So I tried to hide it. But with the LOVE and SUPPORT of family, friends and the LFANJ, I now have a wonderful family of my own.
My son was born with neonatal lupus, a rare form of temporary lupus that is passed on to the baby during pregnancy. Neonatal lupus appeared as a rash developing soon after his birth and lasted several months before disappearing. I was told that half of all babies born with neonatal lupus may have a heart condition known as heartblock. Ryan was watched closely for any signs of heartblock but thankfully only presented with a full body rash, whch disappeared after 6 months. He is the love of my life and prays for a cure for lupus some day. He is now 13 years old and a beautiful, smart, athletic, very outgoing "typical" young boy today.
Unfortunately, lupus runs in my family. My aunt passed away from the disease while I was in high school, my younger brother was diagnosed in recent years, and I also have several cousins with lupus or related autoimmune conditions. I have been a member of the Lupus Foundation of America, NJ Chapter (LFANJ) for many years and continue to support their efforts raise money to find a cure and to help others through support groups throughout NJ. But I cannot do it alone, so I NEED YOUR HELP!