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$1,500
goal
$2,175
Raised so far

145 % to goal

HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC. SOUTH FLORIDA CHAPTER, FL

Team Hope Twilight 5K Run & Walk - race starts @ 6pm Boca Raton,  Florida

Donations as of April 21, 2014:

$495.00 Raised Offline
$1,680.00 Raised Online
$2,175.00 Total Raised

Laura Petruzzi's Fundraising Page

About Me

My name is Laura Petruzzi and I am 36 years old. I lost my mother, Paula King, to Huntington's Disease in 2003. This devastating disease has now taken the lives of my grandfather, all nine of his brothers. Now my brother, Steve, and I have tested positive and we still have many more family members at risk.

What is Huntington's Disease
 
Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, talk and reason. Eventually, the person with HD becomes totally dependent upon others for his or her care. Huntington's Disease profoundly affects the lives of entire families -- emotionally, socially and economically.

HD is now recognized as one of the more common genetic disorders with more than a quarter of a million Americans having HD or are "at risk" of inheriting the disease from an affected parent. HD affects as many people as Hemophilia, Cystic Fibrosis or muscular dystrophy. HD typically begins in mid-life, between the ages of 30 and 50, though onset may occur as early as the age of 2. Children who develop the juvenile form of the disease rarely live to adulthood. The average lifespan after onset of HD is 10-20 years. The younger the age of onset, the more rapid the progression of the disease. Each child of a person with HD has a 50/50 chance of inheriting the fatal gene. Everyone who carries the gene will develop the disease. In 1993, the HD gene was isolated and a direct genetic test developed which can accurately determine whether a person carries the HD gene. The test cannot predict when symptoms will begin. Research efforts are currently exploring many new avenues and approaches including focus on way to delay onset of HD, development of effective therapies that may slow the progression of HD and ultimately, a cure for the disease.

For a more in depth look at HD, please view the video of the CBS Special on Huntington's Disease located on the left side of the page.

Join Our Cause

On September 25, 2010 in Boca Raton, Florida we will be holding a twilight walk to help raise awareness and funds to help in the fight against HD. You can help by sponsoring our event, joining in our walk or donating through this site. 100% of your donations will go towards research to help find a cure and your transactions will be safe and secure.

Thank you in advance for your support and don't forget to forward this to anyone you know. By helping each other, a cure might be closer then we think!

Much Love,

Laura Petruzzi

Supporters

Comment Donation
The Vazac's in NJ
$50.00
Tony & Linda Petruzzi We love you Laura! Health & Happiness Always!
$30.00
Elaine Noto
$25.00*
Jesse and Elaine Cabassa
$50.00*
Linda Doremus The world needs more people like you!
$25.00
Cliff Penbe
$25.00
maureen cacallaro
$25.00*
Stewart Burn
$20.00*
Robin Garfield
$25.00*
Cheryl Lombard
$50.00*
Mary Burson
$25.00*
Carol Hershman
$25.00*
Linda Tatum From your Allstate Insurance agent
$50.00*
Dorina Moldovan From: Your Dentist
$100.00*
Mary Jane Paulsen
$100.00*
JOHN&MARY SWARTZ YOU'RE A WINNER LAURA!!
$50.00
The Knight Family and Welder Services Inc. Although we can't be there, sending a little love to help push you to your goal.
$156.00
Frank and Andrea Bencivenga Good Luck!!
$150.00
Teri and Rocco Bencivenga Good Luck!! We know you can do it!!
$100.00
Mike and Rosie Bencivenga
$100.00
Rick and Sue Wilson Miss you! See you this winter!
$100.00
Mom & Dad Petruzzi We love you, Laura !
$100.00
Elaine Pieroni Bresnahan God Bless, you are making a difference!!
$25.00
Karen Habib Karen Habib
$20.00
Donna M. Forte For Paula, my favorite patient ever, and for Laura, an angel who walks amongst us
$25.00
Joy & Kevin May there be a cure one day soon!!!
$100.00
Michaela and Dieter Keep it up, you're an inspiration!
$30.00
JoAnn & Larry With hope and love
$100.00
Susan Gauger You go girl! Good Luck!
$50.00
Shari B Lollipop?! I'm a sucker for ammunition....
$50.00
Julie Holland You are in our thoughts and prayers.
$10.00
Matt and Michelle Strazza Good luck and God bless you from Matt and Michelle Strazza
$59.00
Mary Debo God bless you Laura!
$25.00
Sheryl Trainor In memory of Jean & Gene Trainor whose lives were also touched by HD. Good luck Lollipop!
$100.00
Susie and Carlos Genardini Good Luck, Laura!
$100.00
The Muni Family We love you Laura! Good luck!!!!
$100.00

Donation Summary

Raised Offline
$495
Raised Online
$1,680
Total Raised
$2,175
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