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The Aneurysm and AVM Foundation (TAAF)

7th Annual TAAF Awareness Walk San Francisco,  California

Leslye Wilson's Page

Thank you for visiting my Personal Fundraising Page.

My Arteriovenous Malformation Journey began Tuesday, August 26, 2008. I would experience what I believed to be just a migraine for nearly three weeks. The “migraine” would alter my eyesight, and cause my weight to plummet from 107 pounds to 96 pounds in (just three days), due to nausea. I would visit my primary care physician four days after experiencing these migraine type pains, and she would tell me that I just had a migraine, and prescribed meds for the migraine, and nausea. Despite diligently taking my meds, the pains would not go away. A little over a week later, I would go to Howard General’s Emergency Room at the suggestion of a coworker. I would inform them of everything that was going through throughout the past number of weeks. An hour and a CT Scan later, I would be informed that bleeding was found in my right parietal/occipital lobe. This would surprise me and the doctors.

I would get transferred to University of Maryland Medical Center later that evening. After an MRI, and a Cerebral Angiogram, I would get diagnosed with a Cerebral Arteriovenous Malformation (by definition, an abnormal tangle between the arteries and viens)– a condition I knew NOTHING about. A few days later, I would undergo the Gamma Knife procedure to obliterate the AVM, and spend the next two years recovering.

I feel very lucky to be alive, and I feel especially grateful that my coworker suggested that I go to the Emergency Room. If I hadn’t, I probably would not be here. I am participating in the Aneurysm and AVM Awareness Walk to spread awareness on this rare condition, as I believe that it will save someone’s life. In talking to many AVM survivors, a lot of them had no idea what an AVM was before they were diagnosed. At times, AVMs are often misdiagnosed as allergies, or just being a migraine. Some people with AVMs do not realize that they have it until something such as a seizure, brain hemorrhage, or a stroke takes place. I want to do my part to help the Aneurysm and AVM Foundation to better the lives of those who live with this rare disease, and to possibly find a cure.
 

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Donation Summary

Raised Offline
$0
Raised Online
$150
Total Raised
$150
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