Thank you for visiting our fundraising page!
This is Liam who just turned 2 yrs old in June (pictured here with our dear friend Danny). At 6 weeks after birth, Liam was diagnosed with a rare genetic disorder called Prader-Willi Syndrome (PWS). We spent almost 3 months in the NICU trying to come to grips with his diagnosis and wondered all along why this had to happen. We've realized that his condition has a purpose and it has made us a much stronger family for it. PWS is a complex genetic disorder affecting appetite, growth and metabolism. It is typically characterized by low muscle tone, short stature, incomplete sexual development, cognitive disabilities, problem behaviors, and the hallmark characteristics—involuntary and uncontrollable chronic feelings of hunger which can lead to excessive eating and life-threatening obesity.
Liam has a very sweet and lovable personality. We are fortunate that he was diagnosed early and is receiving multiple therapies and hormone treatments to improve his condition. We are really happy with his current progress but yet cautious about his future. Through continued research and awareness, we are hopeful that Liam will be able to lead a productive future which will be positive and rewarding as we know that the road ahead will be challenging for our family while we wait for the next phase of PWS to emerge. Liam is truly fortunate to have so many wonderful family, friends and therapists who love and care for him. We are truly blessed and grateful to them for all their support.
Danny Ho is one of these amazing people who is running the 2012 ING New York City Marathon for the first time ever and to raise money for research and awareness for Liam's PWS. We would like to extend our deepest thanks to him for doing this! So let's give him a goal to see this marathon through to the finish line.
We thank you so much for your support -- and don't forget to forward this to anyone who you think might want to donate too!
May & Michael (Liam's parents)