"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you a hope and a future." - Jeremiah 29:11
Lillie is a two and a half year old little girl who cannot speak, cannot walk, has to be fed through a tube in her stomach, and has no purposeful use her hands. She is trapped in her own body and is completely dependent on her friends and family. Lillie has Rett syndrome, a devastating neurological-developmental disorder that affects 1 in every 10,000 girls. This reality has demolished the hopes and dreams we had for our precious baby. We want to hear her sweet voice say "mommy", see her dance with her daddy, and watch her share secrets with her sisters. She will never know what it is to have a normal life, something we take for granted everyday. Despite her hardships, Lillie always has a smile on her face and a sparkle in her eye. This angel has a voice, and it is our wish to give it to her. There is no cure for this debilitating disease…….yet. Lillie, along with her family and friends, are determined to propel research in the right direction. There IS hope, there IS light at the end of the tunnel and there IS momentum but we need YOU. Your help is our hope!
The International Rett Syndrome Foundation’s Research to Reality Campaign is focused on translating research from the laboratory model to the human model. Rett syndrome symptoms have been reversed in lab mice, and the first clinical trial with a disease modifying therapy has recently begun in Boston, MA. We need to raise those crucial dollars needed to establish more clinical trials, which will lead us to find a cure. Treatments will put an end to this condition which has robbed Lillie and all those diagnosed with Rett syndrome of their health. We invite you to do what you can to help these angels; don’t let another dream go unfulfilled. Will you help by supporting the 1st Annual GA Strollathon? Please help us turn research into reality.
For more information about the International Rett Syndrome Foundation, please visit their website at: www.rettsyndrome.org
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