This page is no longer accepting donations
$5,000
goal
$4,865
Raised so far

97 % to goal

International Rett Syndrome Foundation

Chicagoland Strollathon 2012 Frankfort, Illinois
Training buddies Grace and Lily Brown

Donations as of December 21, 2014:

$795.00 Raised Offline
$4,070.00 Raised Online
$4,865.00 Total Raised

Jon and Jen Brown's Page

     Thank you for visiting Lily's fundraising page!  We are excited to participate in our second Chicago Strollathon, in honor of our three year old daughter Lily who has Rett Syndrome.  Please consider strolling with us on May 20, 2012.  It will be a fun family event with activities, food, and raffles.  Our team the "Lily Bugs" will be wearing red and black.  This year we will be ordering team shirts.  Please let Jen Brown know if you'd like a shirt.

   Rett Syndrome is a rare debilitating genetic disorder that occurs almost exclusively in girls. It’s caused by a random gene mutation every baby girl has an equal chance of acquiring. After 6 to 18 months of apparently normal development, girls with Rett Syndrome develop severe problems with language and communication, learning, coordination, and other brain functions. Because of Rett Syndrome, our daughter Lily cannot talk, walk, or use her hands in a purposeful way.  Though she is profoundly disabled, Lily is a bright, cheerful, loving little girl who makes great eye contact and loves her family so much.  Her beautiful smile lights up a room and her sparkling blue eyes show that she can understand much of what we say.  She is our special angel and brings so much joy to our lives.  Lily requires around the clock care and many therapies, but we hope some day she can break free from Rett Syndrome and live the life we dreamed for her.  Currently, researchers are working hard to find a cure for Rett Syndrome.

      Donating through this website is simple, fast, and secure. It is also the most efficient way to support our fundraising efforts for the International Rett Syndrome Foundation.  This organization has been so helpful to our family.  They are the leaders in Rett Syndrome Research. 

    Thank you so much for your support!  Our sweet "Lilybug" thanks you from the bottom of her heart! 

 

 www.youtube.com/watch

 

Supporters

Comment Donation
Tom Kara and Trent Stuewe
$50.00
Nick, Maura, and Helen Correa
$25.00
Dennis Brown
$50.00*
Eddie and Nicole Cavazos We love you lots Lily!
$100.00
Correas
$25.00
Simmons girls
$30.00
Mary DeLaurentis
$20.00*
Popcorn Town & Candyland, Dona Marie
$160.00*
Randy and Nicole Ellul & Friends
$215.00*
Anonymous
$50.00
Mrs. Crowley and Family For one of my favorite little readers!
$30.00
Kathy Benz You go Lily!
$10.00
Jean, Linda, Lynne, Connie, Claudia, Amanda, Pam for Lily, in memory of Great Great Aunt Elsie
$350.00
mary curtin
$50.00
Anonymous I will keep her in my prayers.
$50.00
Jeff and Laura Brown We love you Lily-bug!
$250.00
Papst Family You are in our prayers!!!
$50.00
Steven Anna Lilianna & Luke Buss
$150.00
Annette Grogan What a sweetheart!
$50.00
Ann Wilson
$20.00*
Rex and Jan Toepke
$25.00*
Margie Collins Lily is in our prayers
$50.00
Mike and Gina Gentile
$100.00
Carly, Pat & Rick Riley
$100.00
Pete Romaniak
$50.00
Wolfgang and Colette Seifert
$100.00*
Phyllis Meade
$25.00
Lori and Bill Doolin
$50.00
Diane & Al Mussachio Your sweet Lily is always in our prayers!
$25.00
Jason & Audrey Akai
$30.00*
Jill Jandacek
$25.00*
Joanne Roman My thoughts and prayers are with you!
$20.00
Miley Family
$100.00
Kevin and Julia Dombrowski
$100.00
Nicole Mozden You inspire me Lily!
$100.00
Morley Family Molly and Connor are lucky to have Lily in class!
$50.00
Marie and Dana Dubuc Have a great Strollathon, love you!
$100.00
Jeff, Diane, Emily, Maddie and Jimmy Boldt Love you guys :)
$100.00
Gino and Nicole Riccardini Good luck!
$50.00
Bob and Char Brown
$100.00
Gail & Jeff Good Luck!
$200.00
Heather Wehmer Heather Wehmer
$25.00
Nicole Bernat
$20.00
Shana Goetz
$25.00
Tim Sullivan
$100.00
M. Winter
$100.00
Anonymous
$100.00
Anonymous
$25.00
Jeanne Peterson
$25.00
Michelle Killmon Good luck getting to your goal!
$25.00

Donation Summary

Raised Offline
$795
Raised Online
$4,070
Total Raised
$4,865