Thank you for visiting our new fund raising page! Our old firstgiving page broke :)(www.firstgiving.com/lukey)
Our goal is simple: We need a cure and we need it now!
It is so hard to believe that it's been more than 6 years since the day we learned of Lucas' diagnosis. I remember people saying how lucky we were that he was so young because the cure was on the horizon. That was 6 years ago and although they are a lot closer today to uncovering the mystery, it is sometimes hard to hold onto that hope as we once did. Like when you see your son struggle to stand up from sitting on the floor or get into a car or when he tells you that he sometimes feels like crying because he wants to be able to run around the bases like his friends do. On those rare dark days, our minds go to places that they should never have to go and we need to remind ourselves how incredibly fortunate we are to have these wonderful days with our son because not everyone has them. And then we look at this fund-raising page and think of all the wonderful, caring people that have made donations or have helped us with one of our fund-raisers or have shown compassion or have supported us or have helped us to raise awareness for DMD and we know that we need to hang onto that hope and keep raising money for all the boys that can't run around the bases.
Lucas was diagnosed with this horrible disease on February 12, 2007. Duchenne Muscular Dystrophy (DMD) is a debilitating and fatal disease that affects one of every 3500 boys. DMD is a genetic disease that destroys muscles. First the legs go, then the upper body sags, and eventually, the lungs and heart stop working. There is no treatment and there is no cure. Parents are left to watch as their children slowly fall apart, and hope -- against the odds -- that they make it past 20.
Lucas turned 11 this past March and although there is so much hope surrounding DMD reserch and we continue to see amazing progress that is being made in finding a treatment or a cure, we are all too aware of time speeding by and every second that goes by takes with it another destroyed muscle that can never be repaired. We need a cure NOW.
We are so close to the answer but we need your help to raise money and to raise awareness so that the researchers can push ahead and save this generation of boys.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support our fundraising efforts. We hope that you will consider helping us to put an end to this horrible disease. We chose Parent Project as it is an amazing well-established, non-profit organization that directly funds this necessary research.
Every day, every hour, even every second that goes by, counts in the battle we are fighting to find a cure.
We don't have the words to thank you for your support. Your contribution will give children like Lucas a chance to someday run around the bases!
If you are not comfortable donating on line, you may send donations to: Parent Project Muscular Dystrophy, 401 Hackensack Avenue, 9th Floor, Hackensack, NJ 07601. Make sure you mention Lucas so your donation will count toward our goal!