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$4,000
goal
$3,385
Raised so far

85 % to goal

SCLERODERMA FOUNDATION - DELAWARE VALLEY CHAPTER

12th Annual Stepping Out to Cure Scleroderma Shore Walk Manasquan,  New Jersey

Donations as of May 24, 2013:

$0.00 Raised Offline
$3,385.01 Raised Online
$3,385.01 Total Raised

Lisa Egan's Page

Thank you for visiting my personal fundraising page.

For those that do not know I have been a Scleroderma SURVIVOR for over 19 years now. The time has come for me to step up and help raise awareness and funds for this horrible disease. If you can't donate think about joining Team LeeLee on Sunday for the walk and some lunch and laughs after.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts.

Scleroderma, also known as systemic sclerosis, is a chronic, often progressive and devastating autoimmune disease in which the body's autoimmune system attacks its owntissues. There are 300,000 Americans with Scleroderma, and four out of five are women - usually stricken in the prime of life. The cause of Scleroderma is unknown and the length or course of the disease is unpredictable. It is characterized by swelling of the hands and feet, stiffness, overwhelming fatigue and extreme sensitivity to cold. As the skin hardens, the disease may begin to affect internal organs such as the kidneys, lungs and heart. Its symptoms can range from mild to life-threatening.

It is difficult to solicit funds for research and public awareness for Scleroderma due to the small number of patients (just over 300,000 nationally) who have this disease. It is called an "Orphan Disease" in government lingo, and as such, receives a small percentage of the funds earmarked for research. That's why it is so necessary for interested individuals to do what they can to raise awareness and funds for Scleroderma! We can only hope that someday, disease will have a cure, but for now, the fight is still on in many arenas.

Although there is no cure for Scleroderma at the present time, there are many treatments available. And, of course, there is always hope that in the not -too - distant future, medical research will find a cure. Research for Scleroderma is increasing each year. In fact, some of this research is made possible by your generous contributions. The Scleroderma Foundation is a 501(c) (3) national nonprofit organization serving the interests of persons with Scleroderma. The Foundation's chapters and support groups nationwide help to carry out its three-fold mission of support, education, and research. To learn more about my nonprofit, please go to the website-- http://www.scleroderma.org/chapter/delaware_valley/

Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!

Supporters

Comment Donation
Bob Wiren
$25.00
Lou & Ellen Guhring
$50.00
The Nowaks
$25.00
Utah Jaxon's You Go Gurl!
$225.00
Randy McVane Thank you for trying to make a difference!
$50.00
Noreen Burns
$50.00
Laurie Albee
$25.00
Craig, Danielle & Riley Great job, Lisa!
$50.00
Patty and Mark Hopkins Go Lisa---have fun on the walk!
$100.00
Steven Ploshnick & Jennifer Steeg Keep the faith.
$100.00
ROSALIE LEVALLEY WAY TO GO LISA !!!!
$25.00
Stacie, James and Silas
$200.00
Karen Muenichsdorfer Cronin
$50.00
Yvonne Copeland & The Girls Continued good health & peace
$100.00
The Berbs Find a cure!
$100.00
Pat & Ed Gallagher Good Luck & Good Health
$50.00
Jeff & Lori Asch
$50.00
Monique and Peter Koehler
$25.00
Jamie & Mary Rosen
$100.00
Teresa & Kenny Aaron in FLA :) Good luck!
$50.00
Jerry and Andrea Kaplan Good luck on raising money for this great cause.
$100.00
Anonymous
$20.00
Mom and Dad u take after your father, oops your mother, love u
$250.00
Lawrence & Shirley Footman God Bless
$25.01
Angie Baczyk Best wishes!
$25.00
Anonymous Jackenthal Herbert
$50.00
Cuzzin' TJ All the way!
$100.00
Chris D'amico
$100.00
Earl Monk Good luck! God speed!
$50.00
Ed Oleynick Keep on walkin'
$40.00
Lee Katz
$100.00
Heather Nowak
$50.00
Anonymous
$400.00
Allison Doherty
$25.00
Lola and Zoe
$75.00
Anonymous
$25.00
Stuart Schrenzel
$100.00
Andy and Maria Polansky
$100.00
Laurie and Michael Green
$100.00
Ed Jackenthal GO TEAM LEE LEE!
$200.00

Donation Summary

Raised Offline
$0
Raised Online
$3,385
Total Raised
$3,385
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