Thank you for visiting my fundraising page!
I am trying to raise money for Team GSF. All money raised will go towards SMA research funding, taking us one step closer to finding a cure for this horrific disease.
Our dear friends, the Strongs, started this foundation to help their daughter and other children like her. You may not be familiar with SMA, but it is probably the most horrible disease you could imagine. Gwendolyn, Bill and Victoria's daughter, has SMA Type 1. She is four years old and has limited movement of her index fingers - and that's it. Her mind is healthy, but she is completely paralyzed. She cannot speak. She needs assistance to swallow.
Unfortunately, this disease, while rare, is not THAT rare. SMA is the number one genetic killer of infants. One in 40 individuals carry the SMA gene. But, there is hope. It is currently estimated that we are 3 to 5 years away from finding a cure. Stem cell research is also required to find a cure. Once a cure is found, it is expected the findings can be used to help fight other devastating diseases, such as Alzheimer's and Parkinson's.
Donating through this website is simple, fast and totally secure. It is also the most efficient way to support my fundraising efforts.
Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!